19 June 2007 12:00 AM
Our three-year-old daughter has been diagnosed with neurofibromatosis. She was born with quite a few small, pale brown skin marks, which caused her no problems. We thought they were just simple birthmarks. When she went to the GP about something unrelated, she saw a new doctor who thought the marks might represent an underlying problem. She was sent to a paediatrician, and after scans and examinations, we've been told that she has neuro-fibromatosis type 1. It's apparently a genetic condition, but neither of us has any sign of it. Where can we find out more about it? I looked on the internet, and some of the stuff I saw was frightening.