Warning over online 'miracle cures'

On Facebook
Life & Style blogs

HIV orphans in Thailand prepare for the future

In Baan Gerda, a community for HIV infected or affected youngsters in Northern Thailand, a group of ...

Online House Hunter: England’s most romantic places

Our Online House Hunter goes in search of romance this Valentine's Day...

Online House Hunter: Rugby – a Dickens of a town

Charles Dickens didn't think much of the railway town of Rugby in Warwickshire, calling it Mugby. Bu...

Patients should not place "false hope" in promises made by untested internet miracle cures, medical experts warned today.

Independent medical charity Sense About Science said many vulnerable patients are being duped by "surreptitious promotion and misleading stories" online and spending thousands of pounds on drugs that might be nothing more than snake oil.



The charity said it is worried about "the emotional and financial costs of over-hyped treatment claims that sell false hope".



Tracey Brown, managing director of Sense About Science, said: "We've been contacted by so many people exhausted from the pressure they feel to try advertised treatments, dietary regimes and exercises.



"One person told us how the last years of his wife's life were spent endlessly pursuing new treatments, from goats blood serums to unlicensed stem cell treatments abroad, all to no avail."



To assist, the charity has published a guide called I've Got Nothing to Lose by Trying It that explains how to tell the beneficial drugs from the bogus.



The guide has received the backing of the Royal College of GPs whose vice-chairman, Dr Clare Gerada, said: "This guide provides a wealth of sensible information to patients and the public.



"It goes a long way to taking the mystery out of medicine and I would recommend it to patients as a common-sense read."



Patients suffering from Parkinson's disease, multiple sclerosis and motor neurone disease are particularly targeted.



Dr Kieran Breen, director of research with the Parkinson's Disease Society, explained how patients are prepared to try anything to ease their suffering.



He said: "It can be tempting to believe personal stories of miracle cures, but only by using tried and tested methods can we move forward and provide people with Parkinson's with the best available advice and treatments."



The campaign has also secured the political support of Liberal Democrat MP Phil Willis, who is chairman of the Innovation, Universities, Science and Skills Select Committee.



The politician said: "The cruellest deception for a patient with a chronic illness is the promise of a cure based on empty hope, not evidence.



"The publication of I've Got Nothing to Lose by Trying It is an inspired attempt to empower patients to evaluate so-called 'miracle cures' with evidence-based advice."



:: The guide can be downloaded from http://www.senseaboutscience.org.uk or ordered free from 020 7478 4380.

Independent Comment
blog comments powered by Disqus
Career Services

Day In a Page

Apple admits it has a human rights problem

Apple admits it has a human rights problem

After years of complaints and workers' suicides in China the technology giant faces up to the human cost of its gadgets
Peter Moore: 'I feel guilty I'm the only one alive'

Peter Moore interview

'I feel guilty I'm the only one alive'
Sellafield faces nuclear option as overspending threatens plant's future

Sellafield faces nuclear option

Overspending threatens plant's future
Israel blames Iran for embassy bomb attacks

Israel blames Iran for embassy bomb attacks

Tehran rejects Netanyahu's 'lies' after diplomats in India and Georgia targeted
Former manager enjoying Apoel crack at the big time

Tommy Cassidy interview

Former manager enjoying Apoel crack at the big time
James Lawton: Patience may not be a virtue this time, Roman – Andre Villas-Boas looks all at sea

James Lawton: AVB looks all at sea

Abramovich's visits to training reinforce the idea of a coach feeling pressure from above and below
The 10 Best sledges

The 10 Best sledges

Not all of them require snow...
Procrastination: Not now – I'm busy

Procrastination: Not now – I'm busy

Confronting the real reasons for puttting things off can help us beat it
Fun in the sunset years

Fun in the sunset years

A new movie follows retirees moving to India for low-cost care and a culture of respect for the elderly. For many Britons, it's already a reality
Picture preview: Lucian Freud drawings

Lucian Freud drawings

Picture preview
Silent revolution at the Baftas as the French take top awards

Silent revolution at the Baftas

The Artist wins in seven categories, with Meryl Streep the other big success story
Whitney Houston: The diva who had – and lost – it all

The diva who had – and lost – it all

Nick Hasted charts the highs and lows of Whitney Houston's life
How Picasso won over (some of) the British

How Picasso won over (some of) the British

Winston Churchill and Evelyn Waugh hated his work, but Picasso provided inspiration for a whole generation of UK artists
Topshop: A Decade Of Design

Topshop: A Decade Of Design

When London Fashion Week starts on Friday, Topshop will celebrate 10 years backing its brightest young stars
John Prescott: 'My wife thought I'd just retire, but I'm not a slippers man'

'My wife thought I'd just retire, but I'm not a slippers man'

At 73, John Prescott isn't mellowing. In fact he's taking a shot at becoming a police commissioner