A month into a trend which has seen athletes, celebrities and a former world leader being drenched with ice cold water to raise awareness for Amyotrophic lateral sclerosis (ALS), the internet has started to yawn in boredom.
Now, in a funny, frank, and deeply touching video that has garnered over 3 million views in just four days, photographer Anthony Carbajal, who suffers from the form of motor neurone disease, has delivered a blow to critics of the Ice Bucket Challenge videos.
The video begins with the 26-year-old cheekily showing off his shocking pink shorts with “Kiss my ALS” emblazoned across the back, dressed in a tiny red bikini top. Like Britney, Hayden Panettiere, and Vin Diesel before him, Carbajal nominates a string of celebrities, including talk show host Ellen Degenes, and singer Miley Cyrus, to take the challenge before his friend soaks him.
But in contrast to celebrity videos of the challenge, which have been criticised for barely mentioning the disease, the scene cuts to Carbajal in his home where he shows viewers the realities of living with the degenerative disease.
In pictures: The famous do the ice bucket challenge
In pictures: The famous do the ice bucket challenge
1/16 Lady Gaga
Lady Gaga managed to keep an admirably straight face as she poured what looked like a solid silver bowl of cold water over herself
2/16 Homer Simpson
Fans were overjoyed when their favourite yellow cartoon character got involved in the campaign to raise money to help those suffering from ALS. As per usual with Homer Simpson, things escalated quickly
3/16 Reece Witherspoon
One of those who have arrived slightly late on the scene, actress Reece Witherspoon looks nervous but resolute as she has a bucket of ice-cold water chucked over her head
4/16 Lily Allen
Lily wore a bikini as she self-administered her bucket of icy water. She thanked Jess Glynne for the nomination, and passed the challenge onto Mark Ronson, Millie Mackintosh and rapper Giggs
5/16 Daisy Lowe
Celebrity ALS Ice Bucket Challenge videos seem to be coming in faster than we can watch them - model Daisy Lowe is one of the most recent to get involved. She was nominated by Sun journalist Dan Wooton, and passed it on to radio presenter Nick Grimshaw and Abbey Clancy
6/16 Bill Gates
One of the first to go viral on YouTube, Bill Gates had freezing water tipped over him in a bid to raise millions of dollars to fight the illness ALS
7/16 George W. Bush
It felt like quite an important moment when the former President of the United States accepted nominations from his daughter Jenna Bush Hager, golfing champion Rory McIlroy, Woody Johnson, and Jim Harbaugh. He nominated 'my friend Bill Clinton'
8/16 Jimmy Fallon
In an official letter this week, the ALS Association said: 'Never before have been in a better position to fuel our fight against this disease.'
NBCU Photo Bank via Getty Images
9/16 Tom Hiddleston
Amyotrophic lateral sclerosis affects the brain and the spinal cord. Motor neurons degenerate and die which makes it increasingly difficult to move muscles
10/16 Rita Ora
There is no known cause of ALS, though there is a proven hereditary factor in some cases
11/16 Taylor Swift
There is also no known cure, though the millions being raised by the ALS association will go towards researching these great unknowns
12/16 Oprah Winfrey
The illness is also known as Lou Gehrig’s Disease, named after the all-time great baseball player from the early 20th Century whose time at the top ended when he was stricken with the illness in 1939
13/16 Mark Zuckerberg
The Facebook founder is unarguably the master of the challenge, who – following his drenching – saunters off
14/16 Justin Bieber
Bieber's first attempt was pretty naff: he didn’t quite get it and decided not to use ice or a bucket to complete the challenge. Obviously, the internet moaned at him and he was brilliantly peer pressured into having another go
15/16 Justin Timberlake
Celebrities have been nominating one another to do the challenge
16/16 Christiano Ronaldo and Marcelo
The challenge is now making its way over to this side of the Atlantic, former Manchester United players Paul Scholes and Gary Neville both doused themselves in cold water for a terminally ill fan
“ALS is so f*cking scary you have no idea,” he says, his eyes bloodshot from crying.
The disease affects the brain and the spinal cord, causing motor neurons to degenerate and die which makes it increasingly difficult for sufferers to move their muscles.
When their muscles aren’t used enough, they stop working entirely and patients with ALS begin to feel weak, have difficulty speaking, swallowing and breathing. In the later stages of the illness, patients may become totally paralysed.
“I have been so terrified of ALS my entire life because it runs in my family. My grandmother had it, my mother was diagnosed when I was in high school, and five months ago I was diagnosed at 26 years old."
The photographer goes on to explain that his hands are beginning to atrophy, and that he has noticed it is more difficult to start his car, and button up his shirt. “Eventually I won’t be able to use my arms and hands at all," he tells viewers.
Over footage of Carbajal tenderly caring for his disabled mother, 43-year-old Catherine Scott, he explains: “I really hate talking about it, and that’s probably why nobody talks about it.
"Nobody wants to see a depressing person that’s dying and has two to five years to live. They don’t want to talk about it they don’t want their day ruined,” he says starkly.
“I promise your news feed will go back to cat videos and Let It Go covers but right now the ALS community has the main spotlight.”
He ends by apologising for his “rant” and his “tears”, and adds: “if I simply dump ice on my head I don’t think you’re really going to get the point”.
Since Charles Kennedy, a golfer in Florida, started the Ice Bucket Challenge trend, more than $22.9 million has been raised for the cause.Reuse content