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Clegg's wife hits out at stem cell waste

Government urged to fund national scheme for umbilical cord blood cells

By Steve Connor, Science editor

Miriam Gonzalez Durantez with Nick Clegg and their son, Miguel

PA

Miriam Gonzalez Durantez with Nick Clegg and their son, Miguel

The wife of the Liberal Democrat leader Nick Clegg has criticised the financial and bureaucratic barriers that prevent British mothers from donating discarded umbilical cords to a national tissue bank.

Miriam Gonzalez Durantez, who married Mr Clegg in 2000, said she wanted to donate the cord blood cells of her third child, Miguel, to a national tissue bank but was told it was impossible.

Cord blood contains stem cells that can be used in transplant operations to treat a range of disorders relating to the blood and immune system, such as leukaemia and anaemia.

The Government has said that it wants to build up a national cord blood bank so that patients in need of a transplant can be matched to the right tissue donor, but the size of the bank is still too small to be practicable. Ms Gonzalez was told that even if she paid for the collection and transport of her son's umbilical cord blood to the national cord blood bank it would not be possible for the bank to store it. She understood this to mean it was at capacity.

"It seems to me absurd that we are throwing away all these very valuable materials, not just for transplants but also for research," she told The Independent.

The NHS has been collecting cord blood for a national bank since 1996 but only a handful of hospitals in Britain – Luton and Dunstable, Barnet, Northwick Park, and Watford General – perform the procedure.

Ms Gonzalez urged the Government to provide the additional funding needed to build up the national cord blood bank from discarded umbilical cords, or at least enable mothers to pay for the cost of donating their baby's blood cells to the public bank: "It seems like a waste of precious resources ... and we are far away from what seems like the right target [for the cord blood bank]," Ms Gonzalez said.

Ms Gonzalez gave birth to Miguel in February at a hospital in Kingston, Surrey, where cord blood is not routinely collected from NHS patients. If she had gone private, the service would almost certainly have been offered.

The Anthony Nolan Trust, a medical charity, has set up a voluntary cord blood bank in Nottingham to work alongside the NHS Cord Blood Bank and is lobbying the Government for more funding.

"It is a tragedy that Miriam, like many thousands of mums in the UK, has been denied the opportunity to donate her child's cord blood and save someone's life," said Alex Frazier of the trust.

An NHS Blood and Transplant spokeswoman said: "We have targeted our resources so that we collect from hospitals with the widest ethnic mix."

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Comments

It's a tragedy
[info]49niner wrote:
Monday, 6 April 2009 at 04:51 am (UTC)
Having just lost a friend to leukemia, finding out that NHS bureaucracy has triumphed over patients' willingness to help others is depressing. I hope others with influence will follow Mrs Clegg's lead and correct the system so that sufferers of these life-threatening diseases may be helped in future.
Cord blood collection
[info]peterhollands wrote:
Monday, 6 April 2009 at 08:50 am (UTC)
The UK are currently reviewing their public cord blood storage and it is hoped that this precious resource becomes easier to collect and store in the future. There are excellent private cord blood banks in the UK for those people who wish to store their cord blood for family use only although restrictions by hospitals and even medical professionals can also make this process very difficult. We must totally rethink our attitude towards cord blood stem cell technology in the UK.
Cord Blood
[info]exportskip wrote:
Monday, 6 April 2009 at 06:03 pm (UTC)
I had a similar experience before I gave birth to my daughter. I asked if I could donate the cord blood. The nurses and midwives didn't even know what I was talking about. I tried in vain to find someone to help. I was prepared, as Miriam was, to pay to have it transported to a facility, but it wasn't possible. My body worked hard to produce a rare and precious little girl, as well as a potential harvest of the rare and precious stem cells from which she grew. What a dreadful waste not to use them.

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