Janet Street-Porter: A dignified death at home is a human right
Thursday, 17 July 2008
For once I'm in agreement with Alan Johnson – dying isn't a very sexy subject for news editors. The Health Secretary complained that the media weren't really interested in the plans he announced yesterday which will provide funding to allow a lot more people to die at home.
Well, I'm interested, Mr Johnson, because my sister Pat was one of the many terminally ill NHS patients who spent her final hours in a mixed ward in the unprepossessing confines of Hillingdon Hospital. She would probably have had a better time if I had picked her up from her bed, ripped out the tubes, and deposited her in the nearest Little Chef. At least she might have had some sympathy and attention.
As it turned out, when she entered a coma as she lay dying from lung and brain cancer, I became so enraged that I made a call to the hospital's boss, after which an emergency meeting was convened in a room where cleaning stuff was stored, and a last-minute action plan devised in haste.
Pat was finally loaded on to an ambulance after yet another delay of an hour and taken to a hospice nearby to die later that evening without regaining consciousness. Her family were totally traumatised by the events surrounding her death, for which they have never received an adequate apology.
Pat's story isn't exceptional. After the diary she wrote during her final two weeks was published by this newspaper I received hundreds of emails and letters from people who had experienced the same scenario with their loved ones. Lack of care. Lack of privacy. Lack of dignity.
Two thirds of the 500,000 people who die every year want to do so in their own homes, but only one in five manage to do so. And the care offered to them in their final days, if they are on an NHS ward, will generally be minimal, other than to supply medication and bedpans.
Over the next three years the Government plans to allocate £286m to offer rapid-response nursing teams and support to terminally ill people and their families, enabling them to remain within their own homes or within a hospice for their final days. The scheme is based on that offered by the Marie Curie Cancer Care charity and will also see money allocated to training to ensure that caring for the dying is a core skill for nursing staff.
This week a woman who cared for her elderly parents is going to court to fight their will, which left their entire estate – worth around £2.3m – to the RSPCA. It pains me to say so, but the huge volume of cash left to animal charities in Britain is disgusting. Of course Christine Gill is entitled to a decent share of her parents' wealth, having cared for them for 30 years. But wouldn't it be wonderful if more people planned to leave a big share of their estate to charities like Marie Curie and the woefully under-funded hospice movement?
I would rather ensure that everyone who dies does so with dignity and in the comfort of familiar surroundings. The problem is not going away, and it is unrealistic to expect the hard-pressed NHS to be able to fund it fully.
Time and time again we read of vast sums of money being willed to animal charities, while all over Britain old people lie in hospital beds unvisited, and unfed, slowly dying the most horrible boring death. It is incredible that people care more about the welfare of a dog than their own relatives – but that is demonstrably the case.
Helen, you put me to shame
I have just bought a cross trainer. I've got a big exercise ball, a rack of weights, and some rubber bands that are supposed to tone all sorts of muscles.
But my problem is my lack of willpower, and with the day that I have to put on a swimsuit now less than a month away, I've taken to scanning the internet for one-piece bathing costumes – actually a small tent would be the best solution.
Meanwhile, Dame Helen Mirren flaunts her superb figure wearing a bikini holidaying in Italy. She's older than me – 62 – and looks brilliant.
Mind you, for a million pounds a movie I think I'd be prepared to endure 200 sit-ups a day. Put the woman on that vacant plinth in Trafalgar Square without delay!
* Instead of whingeing about the bonuses paid to BBC bosses, could licence-fee payers start a petition to cheer up Radio 4? The channel offers unmitigated misery from dawn to dusk.
It starts with the Today programme, which offers tales of financial woe every day. Morning serial at the moment is The Gaol – a book about the squalor of Newgate prison, not exactly a barrel of laughs. Then Woman's Hour on dementia and sex.
The morning drama, repeated in the early evening in case you've not had enough misery today, is a true story called What is She Doing Here? about Antigona, a Kosovan refugee now a cleaning lady in north London. Tuesday's episode, read in an insufferably patronising manner by holier-than-thou Fiona Warner, was about dirty knickers and detritus under the marital bed. Ugh!
Then it's time for You and Yours, which is generally moaning about pensions and how to cope on no money. The Archers has been featuring Fallon and Ed who have broken up, so more misery. Please!
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Radio 4 and the misery channel......
Janet mentions that the misery starts with the Today program - sorry, thats too late - get up earlier and listen to Farming Today - dont think ive ever heard a good news story on that program in all the years I've had to endure it.
Cheer up boys and girls - please !!!
While on the subject of Radio 4 and the Today program - I think the studio needs a NHS style 'deep cleaning' operation - even the wonderful new recruit Evan Davis is starting to catch the Today 'disease' - an inability to tell the time correctly......is there a cure? I hope so.........
Jim
Posted by Jim | 19.07.08, 14:59 GMT
Fiona Warner is Fiona Shaw I believe, on all other counts we are in agreement, and I can't bear the amount people give to animal charities.
Posted by HelenSparkles | 18.07.08, 18:51 GMT
Rather than look to other charities in judement of need, when on earth are we going to look at incompetent spending on managers of managers whithin NHS. These people are used as a defence force to wear down questions, cocerns and complaints.
I was cold when reading JSP's account of her sister's death.We are becoming a nation of 'bread head bullies' who have sold most of our survival abilties and now our capacity for care. Maybe short conscription into the NHS would change people's priorities from cash important to care important.
Maybe its too late and we will watch the news while pathetic patches of old folk and disabled teenagers wave homemade banners, hoping to catch the eye of a manager nailing the coffin lid shut with a shoe
Posted by francesca | 18.07.08, 15:10 GMT
I run an animal shelter - The Animal House Jamaica - and believe me it is far easier for human charities to get funding than animal charities. We have found that people give their money to whatever touches their heart - and thank God that for some people it is animals.
Please don't resent the help that is given to them - they cannot speak for themselves.
Posted by Maureen Sheridan | 17.07.08, 17:26 GMT
Well done! and well written by a prominent journalist. Thank you very much.
Saadly the people read these so called "heavies" do not bother much about their kins and are better off and wealthy. Their kins are distant and aloof in most cases to make them tough and on thier own feet. They distance themselves from their parents and return when they are about to die,lol. The gutter press readers are closer and in some cases care more for humans than animals.
Posted by yigal Zavosh | 17.07.08, 16:36 GMT
I will be leaving my estate to my children but if I go before the dog goes, I've made provision for him to be cared for. And I'll leave a bequest for WSPA and Save The Children. There is room for both family and particular special interests and a bit of balance will stop a lot of disagreement, as with most things.
It is preferable that people die at home, if possible. No one wants to die on a hospital ward. I have no idea why Hospices are not funded by the government, they should be.
Posted by Andrea | 17.07.08, 13:17 GMT
I don't see anything immoral in willing money to animal charities, just the opposite. These charities do not receive any help from the government and they still receive very little money in comparison with human charities. If someone prefers leaving their money to the RSPCA instead to their own children, it will probably mean that their children neglected them during their life, no matter what they say now!
Unless I am blessed with children on my own, I will probably do the same
Posted by Isabella | 17.07.08, 12:03 GMT
Re RSPCA and whatever: People are entitled to leave the money they worked for to whomsoever they like.Birth is not an auto right for claimants.Sorry I disagree with you.She only took care of her parents to get hands on that money probably anyway.Sour grapes.? People and money= sick sick sick.I spent 10 years in a law firm listening to families fight over death inheritances.Sickening.
My mother died of cancer years ago when I was 15 ( she was just 40 )After family and doctor talks we all agreed she should die at home in her own bed. I had to learn to make a bed with her in it ( she was paralyzed in legs) bed baths, bedpans and many other mind shattering things.I was rather disturbed for a long time, but now at 40 myself am so glad we did it that way.Not everyone has family at home to take care of them though sadly.
Posted by Maicen MacGregor | 17.07.08, 11:06 GMT
Ms Street-Porter, do you know what? Youve got it a bit back to front. If you mistreat children, you mark them for life.
I had an awful childhood, I have been cheated at work, I have had my car broken into, and I am on the wrong end of Danish estate agents and financiers collusions. In business, I have had to bring a libel action against liars, and I have seen first hand the disgraceful way people treat each other.
My wife was adulterous, like her sister. My son considers me something to be beaten, and utilised from time-to-time. I might as well not have my elder brother, and my stepmother retarded my education by forcing me to stay home when I should have been at school. My father was a violent bully.
Through all this, I have managed to develop a degree of compassion, thanks to my dogs. They are faithful, loving, and I get a magnificent welcome back even if I have been out for just 5 minutes.
Knickers to people. My estate is going to Dogs Trust.
Posted by Alan Robinson | 17.07.08, 08:42 GMT