John Wyatt: 'The right to go through puberty cannot be absolute'

For the treatment

Share
Related Topics

This is a strange and difficult case. Now nine years old, Ashley cannot keep her head up or change her sleeping position. She is also tube fed. When a child is as totally dependent as this, increasing weight and size makes all aspects of care-giving more demanding. Ashley's parents have made it clear their desire for surgical and medical treatment was not for their convenience, but for her wellbeing.

Was it right to subject Ashley to such invasive and irreversible surgery? There is no doubt that the surgery, involving the removal of the womb and breasts, together with prolonged hormonal therapy, was distressing and carried significant risks. The parents and the doctors would have to be convinced the benefits outweighed the burdens.

Doctors will usually advise that it is better to wait until the child is mature enough to make their own decision. But in this case it seems Ashley will never be able to decide for herself.

Clearly it is better to allow normal physical development, but the right to go through puberty cannot be absolute. Suppose that, in a particular rare genetic disorder, doctors knew that puberty was associated with a very high risk of untreatable cancer? Under these circumstances it might be in the child's interests to suppress puberty.

Many parents have said to me that the main problem of caring for a disabled child is the lack of social support. Perhaps the main lesson from this case is that disabled children deserve a better deal from the rest of us.

John Wyatt is Professor of Neonatal Paediatrics at University College London

React Now

Latest stories from i100
Have you tried new the Independent Digital Edition apps?
iJobs Job Widget
iJobs General

Ampersand Consulting LLP: 3rd Line Support Engineer (Windows Server, Exchange Server)

£35000 per annum + Benefits: Ampersand Consulting LLP: 3rd Line Support Engine...

Investigo: Finance Analyst

£240 - £275 per day: Investigo: Support the global business through in-depth a...

Ampersand Consulting LLP: Server / Infrastructure Engineer (Exchange, Windows, VMware)

£32000 - £38000 per annum + Bonus and Benefits: Ampersand Consulting LLP: Serv...

Ampersand Consulting LLP: Virtualisation / Cloud Infrastructure Engineer (VMware, Cloud)

£38000 - £44000 per annum + Bonus and Benefits: Ampersand Consulting LLP: Virt...

Day In a Page

Read Next
Ice skating in George Square, Glasgow  

How many Christmas cards have you sent this year?

Simon Kelner
 

Al-Sweady Inquiry: An exercise in greed that blights the lives of brave soldiers

Richard Kemp
Jeb Bush vs Hillary Clinton: The power dynamics of the two first families

Jeb Bush vs Hillary Clinton

Karen Tumulty explores the power dynamics of the two first families
Stockholm is rivalling Silicon Valley with a hotbed of technology start-ups

Stockholm is rivalling Silicon Valley

The Swedish capital is home to two of the most popular video games in the world, as well as thousands of technology start-ups worth hundreds of millions of pounds – and it's all happened since 2009
Did Japanese workers really get their symbols mixed up and display Santa on a crucifix?

Crucified Santa: Urban myth refuses to die

The story goes that Japanese store workers created a life-size effigy of a smiling "Father Kurisumasu" attached to a facsimile of Our Lord's final instrument of torture
Jennifer Saunders and Kate Moss join David Walliams on set for TV adaptation of The Boy in the Dress

The Boy in the Dress: On set with the stars

Walliams' story about a boy who goes to school in a dress will be shown this Christmas
La Famille Bélier is being touted as this year's Amelie - so why are many in the deaf community outraged by it?

Deaf community outraged by La Famille Bélier

The new film tells the story of a deaf-mute farming family and is being touted as this year's Amelie
10 best high-end laptops

10 best high-end laptops

From lightweight and zippy devices to gaming beasts, we test the latest in top-spec portable computers
Michael Carberry: ‘After such a tough time, I’m not sure I will stay in the game’

Michael Carberry: ‘After such a tough time, I’m not sure I will stay in the game’

The batsman has grown disillusioned after England’s Ashes debacle and allegations linking him to the Pietersen affair
Susie Wolff: A driving force in battle for equality behind the wheel

Susie Wolff: A driving force in battle for equality behind the wheel

The Williams driver has had plenty of doubters, but hopes she will be judged by her ability in the cockpit
Adam Gemili interview: 'No abs Adam' plans to muscle in on Usain Bolt's turf

'No abs Adam' plans to muscle in on Usain Bolt's turf

After a year touched by tragedy, Adam Gemili wants to become the sixth Briton to run a sub-10sec 100m
Calls for a military mental health 'quality mark'

Homeless Veterans campaign

Expert calls for military mental health 'quality mark'
Racton Man: Analysis shows famous skeleton was a 6ft Bronze Age superman

Meet Racton Man

Analysis shows famous skeleton was a 6ft Bronze Age superman
Garden Bridge: St Paul’s adds to £175m project’s troubled waters

Garden Bridge

St Paul’s adds to £175m project’s troubled waters
Stuff your own Christmas mouse ornament: An evening class in taxidermy with a festive feel

Stuff your own Christmas mouse ornament

An evening class in taxidermy with a festive feel
Joint Enterprise: The legal doctrine which critics say has caused hundreds of miscarriages of justice

Joint Enterprise

The legal doctrine which critics say has caused hundreds of miscarriages of justice
Freud and Eros: Love, Lust and Longing at the Freud Museum: Objects of Desire

Freud and Eros

Love, Lust and Longing at the Freud Museum