Leading article: The quiet heroism of carers

Share
Related Topics

There are events which fix the daily knockabout of politics in proper perspective. The death of David Cameron's six-year-old son Ivan, who suffered from cerebral palsy and severe epilepsy, is one of them. However intense the political battle between the Prime Minister and the Leader of the Opposition, a personal tragedy of this kind transcends partisan bickering. Rightly, Prime Minister's Questions were cancelled yesterday and replaced by sombre tributes.

Gordon Brown, whose own daughter, Jennifer Jane, died at just 10 days old in 2002, paid gracious tribute to David and Samantha Cameron, to whom Ivan's short life gave such joy.

For the rest of us, the couple's devoted parenting has illuminated the predicament of all those caring for severely disabled children. And the reality is that too many of these families are offered inadequate support.

As Ian Birrell argues today, respite care is scarce. And families must patiently negotiate a complex bureaucracy to access the facilities that are available. Life is made harder if both parents choose to work or when their financial resources are limited.

Many families find themselves in the latter group. Half of those with disabled children live on the poverty line or below it. More must be done to ease their burden. It is deplorable that one in 10 poor families with disabled children have suffered power supply cut-offs – a problem which could be readily solved if the Government extended to them the winter fuel assistance paid to pensioners.

Meanwhile, there remains a critical shortage of professional carers in the NHS. And this situation could well worsen following the recommendation of the Government's Migration Advisory Committee that foreign nationals be discouraged from entering the UK to take jobs in this sector. We should not accept such senseless restrictions.

A quiet heroism is exhibited by those families who wrestle with the adversities presented by caring for a disabled child. Ivan Cameron's death is a personal tragedy and a public provocation: we must do more to honour the contribution of carers.

React Now

Latest stories from i100
iJobs Job Widget
iJobs General

Recruitment Genius: Account Manager

£20000 - £35000 per annum: Recruitment Genius: This full service social media ...

Recruitment Genius: Data Analyst - Online Marketing

£24000 - £35000 per annum: Recruitment Genius: We are 'Changemakers in retail'...

Austen Lloyd: Senior Residential Conveyancer

Very Competitive: Austen Lloyd: Senior Conveyancer - South West We are see...

Austen Lloyd: Residential / Commercial Property Solicitor

Excellent Salary: Austen Lloyd: DORSET MARKET TOWN - SENIOR PROPERTY SOLICITOR...

Day In a Page

Read Next
 

Tony Abbott: A man most Australian women would like to pat on the back...iron in hand

Caroline Garnar
Australian rapper Iggy Azalea performs in California  

Hip hop is both racial and political, and for Iggy Azalea to suggest otherwise is insulting

Yomi Adegoke
Isis in Iraq: Yazidi girls killing themselves to escape rape and imprisonment by militants

'Jilan killed herself in the bathroom. She cut her wrists and hanged herself'

Yazidi girls killing themselves to escape rape and imprisonment
Ed Balls interview: 'If I think about the deficit when I'm playing the piano, it all goes wrong'

Ed Balls interview

'If I think about the deficit when I'm playing the piano, it all goes wrong'
He's behind you, dude!

US stars in UK panto

From David Hasselhoff to Jerry Hall
Grace Dent's Christmas Quiz: What are you – a festive curmudgeon or top of the tree?

Grace Dent's Christmas Quiz

What are you – a festive curmudgeon or top of the tree?
Nasa planning to build cloud cities in airships above Venus

Nasa planning to build cloud cities in airships above Venus

Planet’s surface is inhospitable to humans but 30 miles above it is almost perfect
Surrounded by high-rise flats is a little house filled with Lebanon’s history - clocks, rifles, frogmen’s uniforms and colonial helmets

Clocks, rifles, swords, frogmen’s uniforms

Surrounded by high-rise flats is a little house filled with Lebanon’s history
Return to Gaza: Four months on, the wounds left by Israel's bombardment have not yet healed

Four months after the bombardment, Gaza’s wounds are yet to heal

Kim Sengupta is reunited with a man whose plight mirrors the suffering of the Palestinian people
Gastric surgery: Is it really the answer to the UK's obesity epidemic?

Is gastric surgery really the answer to the UK's obesity epidemic?

Critics argue that it’s crazy to operate on healthy people just to stop them eating
Homeless Veterans appeal: Christmas charity auction Part 2 - now LIVE

Homeless Veterans appeal: Christmas charity auction

Bid on original art, or trips of a lifetime to Africa or the 'Corrie' set, and help Homeless Veterans
Pantomime rings the changes to welcome autistic theatre-goers

Autism-friendly theatre

Pantomime leads the pack in quest to welcome all
The week Hollywood got scared and had to grow up a bit

The week Hollywood got scared and had to grow up a bit

Sony suffered a chorus of disapproval after it withdrew 'The Interview', but it's not too late for it to take a stand, says Joan Smith
From Widow Twankey to Mother Goose, how do the men who play panto dames get themselves ready for the performance of a lifetime?

Panto dames: before and after

From Widow Twankey to Mother Goose, how do the men who play panto dames get themselves ready for the performance of a lifetime?
Thirties murder mystery novel is surprise runaway Christmas hit

Thirties murder mystery novel is surprise runaway Christmas hit

Booksellers say readers are turning away from dark modern thrillers and back to the golden age of crime writing
Anne-Marie Huby: 'Charities deserve the best,' says founder of JustGiving

Anne-Marie Huby: 'Charities deserve the best'

Ten million of us have used the JustGiving website to donate to good causes. Its co-founder says that being dynamic is as important as being kind
The botanist who hunts for giant trees at Kew Gardens

The man who hunts giants

A Kew Gardens botanist has found 25 new large tree species - and he's sure there are more out there