- Thursday 23 May 2013
- My Account
- Logout
- Register
- Login
- News
-
Voices
-
Find by writer
- Yasmin Alibhai-Brown
- Rebecca Armstrong
- Memphis Barker
- Terence Blacker
- Chris Blackhurst
- David Blanchflower
- Archie Bland
- Ian Burrell
- Andrew Buncombe
- Ben Chu
- Patrick Cockburn
- Laura Davis
- Mary Dejevsky
- Grace Dent
- Robert Fisk
- Andrew Grice
- Stefano Hatfield
- Philip Hensher
- Ian Herbert
- Howard Jacobson
- Ellen E Jones
- Alice Jones
- Owen Jones
- Simon Kelner
- Dominic Lawson
- Donald Macintyre
- Lisa Markwell
- Comment
- Campaigns
- Debate
- Editorials
- Letters
- IV Drip
- Archive
- Our Voices
- Commentators
- Columnists
- Democracy 2015
- IV Drip Archive
-
Find by writer
- Sport
- Tech
- Life
- Property
- Arts & Ents
- Travel
- Money
- IndyBest
- Blogs
- Student
Monday 18 September 2000
The NHS must stop penalising people for their disability
Some people's lives are less worth living than others. No one likes to admit to thinking such a thing, but our commitment to the ideal of equality of respect is tested by our attitudes toward the disabled. The issue has been raised for the second time this month by that barometer of the psycho-cultural health of the nation,
Big Brother. The winner of the programme's £70,000 prize, Craig (a man so temporarily famous he needs no surname), says he will donate it to a fund to help to pay for a heart-and-lung transplant for his best friend's cousin, who has Down's syndrome and has been refused treatment on the NHS.
Some people's lives are less worth living than others. No one likes to admit to thinking such a thing, but our commitment to the ideal of equality of respect is tested by our attitudes toward the disabled. The issue has been raised for the second time this month by that barometer of the psycho-cultural health of the nation, Big Brother. The winner of the programme's £70,000 prize, Craig (a man so temporarily famous he needs no surname), says he will donate it to a fund to help to pay for a heart-and-lung transplant for his best friend's cousin, who has Down's syndrome and has been refused treatment on the NHS.
As with the awful dilemma over the conjoined twins known as Jodie and Mary, the case highlights the ambivalence of common views of disability and the value of life.
Of course, the NHS does not do anything so crude as to deny life-saving operations to people with Down's syndrome on the grounds that their quality of life is less than that of others. The calculation that is usually made in such cases attempts to be value-neutral, in that it is based on life expectancy. Because Down's syndrome is associated with heart and lung defects, people with it tend not to live as long and so are accorded lower priority in the waiting-lists for costly transplant operations.
However, that comes close to penalising people for their disability. That cannot be acceptable. In assessing priorities for NHS waiting-lists, any calculation based on life expectancy should treat people with congenital life-shortening conditions as if they did not have them. Otherwise, there is a risk that doctors are in effect deciding that the lives of the disabled are worth less than those of other people.
Let us hope that the unlikely publicity given to Craig's friend's case prompts a re-evaluation of the rationing system.
-
Grace Dent: I’m not sure how these people can avoid being called ‘bigots’. And the more ‘civilised’, the worse they are
Grace Dent -
The Daily Cartoon
-
Woolwich murder: They killed, then they performed - these men should be starved of our attention
Frank Furedi -
Stop laying into GPs. We don't deserve it
Dr Clare Gerada -
Woolwich attack: The EDL will seek to exploit this evil crime for their own evil ends
Jamie Lewis
-
Woolwich murder: They killed, then they performed - these men should be starved of our attention
-
Woolwich: The EDL were camped outside my house
-
Woolwich is only the latest act of barbarism: Muslims, we must take on this cancer in our midst
-
Embrace the e-book, Stephen King. It is not for an author to tell his readers how to read
-
Debate: Is it right to call the murder in Woolwich a ‘terrorist attack’?
-
What, let gays get married? We must be bonkers
Get your summer started with British Military Fitness
BMF is the UK’s biggest and best loved outdoor fitness classes
Visit York
Find out what The Independent's resident travel expert has to say about one of the most beautiful small cities in the world
Making reading fun for kids
Nook is donating eReaders to volunteers at high-need schools and participating in exclusive events throughout the campaign.
Introducing the 'Get Reading' campaign
Get the latest on The Evening Standard's campaign to get London's children reading.
Enter the latest Independent competitions
Win anything from gadgets to five-star holidays on our competitions and offers page.
Business videos from commercial thought leaders
Watch the best in the business world give their insights into the world of business.
Get the best in opinion from Independent Voices, straight to your inbox every Thursday lunchtime.
Subscribe
Day In a Page
Edward VIII’s phone calls - and how MI5 bugged them
Hollywood's random acts of red-carpet kindness
Not secure any more: G4S boss heads for exit at last
How to say ‘I’m a sellout’