They should be discussing now with the Department of Health how to provide these tests when they become available, not preventing their development.
I share and respect the misgivings many people have about the inevitable changes genetic research will bring to the way we think about life in moral, ethical and biological contexts. But for those who, like myself, watched a child or relative suffer and die when there was nothing present medicine could offer, regulation of future knowledge is what is wanted, not prohibition.
We do not wish to become regarded as an endangered sub-species, repeating the pain over generations, but we need the support of the rest of humanity to achieve this.
Mrs ANN HUNT
Tuberous Sclerosis Association