Letter: The challenge of living with MND

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The Independent Online
Sir: Jeremy Laurance's report (10 June) is misleading regarding the role of the Motor Neurone Disease Association in the Annie Lindsell case. As the only national organisation providing care and support to people living with Motor Neurone Disease (MND) we have a keen interest in the outcome of the case and the potential implications for our members. However, your readers should be aware that we are not in any way involved in the action being taken by Ms Lindsell and that our support has not been sought.

MND is a rapidly progressive terminal condition affecting approximately 5,000 people in the UK. The cause is unknown and there is no cure. The challenge for people living with MND is how to maximise their quality of life up to the very end. The Annie Lindsell case will open up the debate about quality of life and we welcome the discussion which will follow.

GEORGE LEVVY

Chief Executive

Motor Neurone Disease Association

Northampton

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