Stay up to date with notifications from The Independent

Notifications can be managed in browser preferences.

The area of the UK that’s a global hotspot for Huntington’s disease

One man shares his experience living with Huntington's disease
  • Northern Scotland has one of the highest global rates of Huntington's disease, a neurodegenerative disorder.
  • New research from Aberdeen University identified more than 160 untested adults in the region carrying the Huntington's gene, with the actual number likely higher.
  • The study confirms a rate of 14.5 per 100,000 people in northern Scotland, over five times the global average.
  • Researchers used family-based NHS records, offering a more accurate count than previous studies that relied on statistical modelling.
  • This data will help health boards plan for future care and treatment of Huntington's disease, including genetic counselling and testing.
In full

Thank you for registering

Please refresh the page or navigate to another page on the site to be automatically logged inPlease refresh your browser to be logged in