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The company that turned 'disability' into an asset

By Cahal Milmo

Thorkil Sonne: on a one-man mission to revolutionise society’s isolating attitude to autistics

Anders Birch

Thorkil Sonne: on a one-man mission to revolutionise society?s isolating attitude to autistics

When Thorkil Sonne was told that his three-year-old son had autism, the Danish IT specialist ran the classic gamut of responses for parents of an autistic child, from anger that a doctor could burden his happy boy with the label of a lifelong disability, to a desire to learn everything about the condition.

Few, however, go so far as to embark on a one-man mission to revolutionise society’s isolating attitude to autistics by setting up a company staffed almost entirely by sufferers that has some of the world’s biggest corporations, including Microsoft and Cisco Systems, queuing to buy its services.

Specialisterne, which has a turnover of £2m and employs more than 40 people with an autism spectrum disorder (ASD) in Denmark, is set to open its first international operation in Glasgow early next year as a test run for an expansion strategy which would see people with ASD working as IT consultants world wide.

The Independent understands that funding could be granted for the scheme next month, paving the way for the first company in Britain which not only predominantly employs autistics but uses the strengths of its staff – phenomenal levels of numeracy, concentration and memory – to beat off rivals in one of the world’s most competitive industries.

Inspired by the talents of his son Lars, who once stunned his father by reproducing from memory a road map of Europe, Mr Sonne set up Specialisterne (Specialists in English) six years ago, concerned at the exclusion from the workplace of people with autism and realising that the traits of “high functioning” autistics were in demand among computer software companies.

Mr Sonne, 49, a father of three, said: “I wanted Lars [to have] the same chances as his brothers. When you say autism most people think of the film, Rainman, and the common perception is that anyone with such a condition is unemployable.

“I came to realise this was very far from the truth. As long as someone with autism could feel comfortable in a workplace and have the social confidence to perform a job then they would have skills that made them more capable than others to perform certain tasks which required large degrees of precision, focus and memory recall.”

After remortgaging his home and recruiting six employees with the version of autism known as Asperger’s syndrome, Mr Sonne persuaded his previous employers, the Danish communications company TDC, to grant him a contract testing mobile phone applications and games.

When it became clear that the team could repeatedly test the software at a level which “generalists” – Mr Sonne’s term for people without ASD – could not sustain, demand for Specialisterne’s services and its “consultants” took off. The company was employed to test the Danish version of Microsoft’s Windows XP Media Centre and its client list ranges from CSC, a global IT services company, to Nordea, Scandinavia’s largest bank.

Among the techniques Specialisterne has perfected is the use of a complex form of Lego to assess the abilities of potential employees, whose condition means the social interaction of a formal interview is often impossible.

Mr Sonne said: “This is not about offering cheap labour or some kind of occupational therapy. We charge market rates, our consultants receive a market salary and that is because they simply do a better job. If you have a piece of software that needs repeated testing, a student being paid to do in Britain or India is going to get bored and lose concentration at the fifth or sixth attempt.

“Our consultants relish the challenge of that repetition and they can spot anomalies in a large amount of data that others would struggle to spot. We cannot be perfect but our error rate is 0.5 per cent compared to the five per cent for other testers.”

The company counters any concern that it is ghettoising its workers by pointing out that 70 per cent of its staff work on the premises of the client. A Specialisterne support worker ensures that the most suitable environment – a lack of sudden and loud noise, clear instructions and an average working week of around 25 hours – is provided by the host.

It is a recipe for success (the company made a profit of £100,000 last year which was ploughed back into the charitable foundation that owns Specialisterne) that Mr Sonne intends to repeat in Scotland. It is understood that software and data-inputting companies north of the border have already expressed interest in the company’s services.

The National Autistic Society (NAS), which is working with the Danish entrepreneur and other bodies in Scotland to set up the venture, said the company’s groundbreaking techniques could be a vital tool to help people with autism into work. Research to be released by the charity this week shows that 80 per cent of autism sufferers who receive incapacity benefit would like to work. Just 15 per cent of Britain’s 500,000 autistics are in full-time employment.

Raemond Charles, of the NAS, said: “There is a vast pool of untapped potential out there which we are simply missing. A branch of Specialisterne in the UK would be a very important step in opening up the work place to people with autism.”

In the meantime, Mr Sonne said that if proof were needed of the benefits of his company’s work then look no further than his staff. He said: “I have seen people transformed. One of our consultants had not worked for 24 years. Now he is testing for Cisco Systems. He finally feels he is part of society and respected. He can talk up at family gatherings. He recently got a girlfriend. Lars wants to work for us as a trainer. I see no reason why eventually those who are at lower points in the autistic spectrum should not work as well.”

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Comments

Honorable Effort
[info]delphicvi wrote:
Monday, 12 October 2009 at 05:33 pm (UTC)
A wonderful,uplifting, and heartwarming story. Thorkil Sonne deserves to be honored for his efforts.
Work for people with Asperger's
[info]strombyworld wrote:
Monday, 12 October 2009 at 05:43 pm (UTC)
How fantastic. What a breath of fresh air to see someone taking a creating approach to what is usually a very frustrating problem. Many believe that we should work to our strengths but this is particularly important for people with some type of disability. What a shame our governments don't have the wit or ingenuity to come up with such solutions.
Generating Awareness for Autism/Asperberg Syndrome
[info]restassured2009 wrote:
Monday, 12 October 2009 at 09:17 pm (UTC)
Mr Sonne without doubt has made a great move in creating a workplace for people with autism. I hope the Government is paying attention here.
offensive
[info]violet241 wrote:
Tuesday, 13 October 2009 at 01:52 am (UTC)
This article uses offensive language and stereotypes that pigeon-hole all people with autism into one category. The noun "autistic" to describe people with autism creates the sense that autism defines each person on the spectrum, rather than another characteristic that makes up his or her personality. Replace the word "autistics" with the word "Whites" and re-read the article. Additionally, the author uses the word "sufferers" which implies autism is something which people "suffer" from. While it is a disability, and those with autism do require special attention and may require accommodations or modifications, the connotation of "sufferer" is negative and further contributes to the negative view of autism.
Finally, the broad stereotype that is threaded throughout this article is outrageous and dates back to the days when those with autism were labeled as "idiot savants". Maybe the people who have been hired by this company are skilled at math, but not everyone with autism is great at numbers, and certainly, many with autism do not have superior concentration skills. Some people with autism enjoy science fiction, some enjoy reading, some enjoy art, in short, those with autism have varied interests just like every other person on this earth.
I applaud the efforts of Mr Sonne for providing jobs to people diagnosed with autism and for working to change attitudes. Autism is not something to "suffer" from, its not something to be ashamed of. The author of this article furthers the negative connotations that Mr. Sonne is working so hard to change.
Re: offensive
[info]jcpafrica wrote:
Wednesday, 14 October 2009 at 11:11 am (UTC)
Violet, I believe that your comments are disingenuous. What word do you suggest as a replacement for autistics? Any new word you use will simply, in time, come to be associated with the same condition and in years to come, people will find THAT word offensive as well.

I come from South Africa and since democracy our society openly refers to Whites and Blacks - labels are not something to shy away from and they are not necessarily marginalising or denigrating. I think you have completely missed the point of the article and got bogged down in semantics and political correctness - at no point does the article or the author suggest that autism is something to be ashamed of.
"Autistics"?!
[info]rose_benjamin wrote:
Tuesday, 13 October 2009 at 12:56 pm (UTC)
I agree with Violet. The word "autistics" sent a shudder down my spine. Surely the whole point of the article is to celebrate the move away from defining people by their illnesses?

If it had mentioned "spastics", "epileptics", or "the demented", the shock would have been obvious. What did people with autism do wrong?
Good story, but language matters
[info]becaly wrote:
Tuesday, 13 October 2009 at 02:34 pm (UTC)
I agree with Violet's comments. It would not have taken much time to say 'people with autism' rather than 'sufferers' or 'autisitics', and the problem of generalization could have been avoided by pointing out that not all autistic people are suited to IT work.

Good story other than that - sounds like Mr Sonne is doing good work, improving inclusion in the workplace.
Cahal Milmo should be ashamed of himself
[info]janeshepherd wrote:
Tuesday, 13 October 2009 at 02:37 pm (UTC)
I agree with Violet and Rose below - the writer of this piece has perpetuated the negative stereotyping associated with disability in general and autism in particular. Will the Independent please send him on a Disability Equality training course asap?
Youre Right
[info]rubix_caller wrote:
Thursday, 15 October 2009 at 12:21 pm (UTC)
But none of you realize how a person not associated with an autistic society and having been conditioned by their surroundings is going to take your denigrative comments.
Cahal Milmo may have used language vaguely offensive but he drove home the idea that these aspies are not only not handicapped but that they are GIFTED! I applaud him.
Asperger's, Hyperlexia, and Computer Programming
[info]goodcomputerguy wrote:
Wednesday, 14 October 2009 at 03:35 am (UTC)
People who have Asperger's, who are good at math, and who have what is known as "hyperlexia" may make excellent computer programmers, in addition to being good software testers; as the information on the Internet from the following URLs likely attests to:

http://www.sciencedaily.com/releases/2004/01/040108080212.htm

http://www.hyperlexia.org/hypermathia.html

http://encarta.msn.com/encyclopedia_761575695/Programming_Language.html
Simply The Best DAD!
[info]nika987 wrote:
Thursday, 15 October 2009 at 07:02 am (UTC)
I do not imagine any other Dad to do better for his son!
A Rosy by any other name would smell as sweet!
[info]josiesmallwood wrote:
Thursday, 15 October 2009 at 10:28 am (UTC)
If my son had been properly diagnosed and had not waited over 5 years to obtain a statement life at school might have been better. His teachers may have understood that he was not just 'lazy' his peers may have been given the correct information and maybe just maybe become a friend. he might not have been given ritalin which made him sleep for three days! he just might have kept his job that he held for 5 years but due to huge changes in management the replacements did not understand his problem even though the company was an 'equal opportunities' company. we have finally been given an appointment for an assessment - he is 33 years old! He has a fantastic memory and works hard and diligently. if he is trained in a certain way then that is the way it is. He is loyal to the extreme and is loved by his family. unfortunately we are the only ones who understand him. he will be happy to know he has Aspergers and then he can go forward. How many others have also slipped through the net? It is a gift as Mr Sonne so rightly says and we need more awareness. Fabulous Dad!!!!!
Wow!
[info]plastudios wrote:
Tuesday, 20 October 2009 at 03:16 am (UTC)
The world needs more press like this to give parents the message of hope, and this proves out an effort that we working on here in the US, only exploring the artistic and creative side of autistics instead of the gloom and doom that everyone hears.

I'm fortunate to work for a 14 year old autistic girl that's an incredibly talented illustrator, cartoonist, story teller, narrator and she just starting doing her own scores for her cartoons. I say I work for because we are building her a company where she will benefit from her talents.

The more we get involved with autistics, the more we see how gifted these kids are and behind the lack of 'normal' social skills there is immense talent! We're working on a program to help identify and nurture these skills.

Please visit our website!
www.Powerlight-Studios.com
appsfor
[info]onlinespeech wrote:
Tuesday, 20 October 2009 at 11:55 pm (UTC)
Follow me on Twitter, I'm also on as Aspergal. People with autism are able to learn and make connections fast. I'm on the spectrum, I own domain names, I work with children on the spectrum, I like to write poems, and I play the piano.
About Neurodiversity
[info]goodcomputerguy wrote:
Saturday, 24 October 2009 at 08:07 pm (UTC)
The following Web address provides access to a YouTube video that provides a living example of the alternative minds that exist within our human neurodiversity:

http://www.youtube.com/watch?v=qRkax1pmpqE
About autism
[info]goodcomputerguy wrote:
Monday, 26 October 2009 at 06:29 pm (UTC)
What is the nature of autism? The following Web address provides access to an article, from the Association for Psychological Science, that puts such into context:

http://www.psychologicalscience.org/media/releases/2007/dawson.cfm


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