The kidney patient subject to bedroom tax - even if room is used for dialysis machine

Plight of MP’s brother raises questions about fairness of controversial welfare reform

It has been 30 years since Rivers Pound moved into his specially adapted council flat in Earl’s Court, west London. The 55-year-old has been on and off dialysis since his first kidney failure at 19, and his flat was one of three in the block designed with its own dialysis room, part of a council scheme to house residents with renal problems.

Then, in April, the Coalition introduced its welfare reforms and everything changed. Although Rivers’s body was rejecting a third transplanted kidney, he was not on dialysis at that moment and so the room that housed his equipment was deemed surplus to requirements.

According to the inflexible rules of the under-occupancy policy known as the “bedroom tax”, he had to find another £120 a month for this “spare” room – or find a new home.

Too proud to accept charity, the musician decided to sell his only possession of value: a piano worth £1,500. He hoped it would cover the extra rent until he was on dialysis again, and thus free from the charge.

Growing up as one of seven children, Rivers Pound is used to being self-sufficient. As a result he didn’t want to ask his siblings for help – even though his brother is an MP. Yet his story so encapsulated the new uncompromising welfare system introduced by the Department for Work and Pensions that last week Rivers’ elder brother Stephen – the shadow minister for Northern Ireland – felt compelled to raise it in Parliament.

Without at first revealing the family connection, the MP said: “There is a young man who lives in Earl’s Court who is in total renal failure. May I tell you that this man’s spare bedroom is a dialysis unit. He has been told that he now has to pay the bedroom tax.”

It was only in his concluding remarks that Stephen Pound revealed his personal interest, saying his brother faced losing his home “for being a kidney patient”.

“[Rivers] is not happy to accept money from the family because he’s proud,” Mr Pound said. “We’ve offered to help, but to a certain extent, why should he have to ask his family? He’s desperately upset by the whole thing. His attitude has been: ‘Don’t make a fuss, I’ll work it out’.”

The powerful drugs Rivers is on to stop him rejecting his artificial kidney leave him drained. He is often too exhausted to walk. Every six months he has an operation at St Mary’s Hospital in Paddington to change a stent. He wants to work but his health often gets in the way.

“I did try and do some voluntary work a year ago, to see if I could do something when I wasn’t in hospital,” he says. “I was leading horses for riding for the disabled but after the first attempt I became very ill with a bone infection and my leg was very painful.”

On top of the failing kidney and the bone infection, he suffers from carpal tunnel syndrome so severe that he is on a waiting list for surgery. Despite the litany of problems, fitness-to-work assessor Atos has now twice declared him well enough for the workplace. “I was on incapacity benefit, but it’s income support now,” he says. “I have to go to the jobcentre because I was considered well enough to work. I’ve just been sent another 19-page form to fill out. It is the third Atos form I’ve had to complete.

“I tell them I’m waiting for a transplant and not well. The problem is some days I’m OK and others I’m really not. I’m so depleted of energy a lot of the time and some days I just know I won’t be great that day. I have to go to the jobcentre for an interview and the last few times I’ve had to do it over the phone because I haven’t been well enough to go.”

Though he is not currently using his dialysis machine, he knows he soon will be. “I’m not using it at the minute because I had a transplant in 1995, but no transplant lasts forever and I was on dialysis for 20 years waiting for this one. It started failing about two or three years ago and it’s petering out.

“In the last few months I’ve been having tests to see if I can go back on the list for another transplant. But having waited at least 20 years last time I don’t expect a kidney to just arrive – and in the meantime I’ll need dialysis.

“They don’t look ahead or at the practicalities. It’s far cheaper for me to use dialysis at home than in a hospital taking up a bed. It’s a false economy, surely.”

Stephen Pound, the Labour member for Ealing North, feels outraged on his younger brother’s behalf. In an interview with The Independent, he criticises the inflexibility of the policy.

“It’s absolutely heartbreaking and it’s the lack of any local ability to look at this humanely that worries me,” he adds. “There’s no wriggle room at all. At the moment they just say that if he pays the extra money, he can stay there.”

A DWP spokesperson said: "Paying for housing benefit for spare rooms is simply unaffordable, but we've been clear from the outset that we would support people who might find the changes difficult. This is why we've given councils 190m in extra funding, some of which has been specifically targeted at disabled people living in adapted homes. People should speak to their council about whether they are eligible for this help."

News
Susan Sarandon described David Bowie as
peopleSusan Sarandon reveals more on her David Bowie romance
Sport
Lewis Hamilton walks back to the pit lane with his Mercedes burning in the background
Formula 1
Arts and Entertainment
The new characters were announced yesterday at San Diego Comic Con
comic-con 2014
Sport
Arsenal supporters gather for a recent ‘fan party’ in New Jersey
football
PROMOTED VIDEO
Have you tried new the Independent Digital Edition apps?
News
ebookA unique anthology of reporting and analysis of a crucial period of history
Arts and Entertainment
No Devotion's Geoff Rickly and Stuart Richardson
musicReview: No Devotion, O2 Academy Islington, London
News
i100
News
Bryan had a bracelet given to him by his late father stolen during the raid
people
News
A rub on the tummy sprang Casey back to life
video
Sport
sportDidier Drogba returns to Chelsea on one-year deal
Arts and Entertainment
The Secret Cinema performance of Back to the Future has been cancelled again
film
Life and Style
Balmain's autumn/winter 2014 campaign, shot by Mario Sorrenti and featuring Binx Walton, Cara Delevingne, Jourdan Dunn, Ysaunny Brito, Issa Lish and Kayla Scott
fashionHow Olivier Rousteing is revitalising the house of Balmain
News
i100
Arts and Entertainment
Christian Grey cradles Ana in the Fifty Shades of Grey film
filmFifty Shades of Grey trailer provokes moral outrage in US
News
people
News
BBC broadcaster and presenter Evan Davis, who will be taking over from Jeremy Paxman on Newsnight
peopleForget Paxman - what will Evan Davis be like on Newsnight?
Life and Style
fashionCustomer complained about the visibly protruding ribs
News
newsComedy club forced to apologise as maggots eating a dead pigeon fall out of air-conditioning
Arts and Entertainment
Jo Brand says she's mellowed a lot
tvJo Brand says shows encourage people to laugh at the vulnerable
Life and Style
People may feel that they're procrastinating by watching TV in the evening
life
News
Tovey says of homeless charity the Pillion Trust : 'If it weren't for them and the park attendant I wouldn't be here today.'
people
Sport
Rhys Williams
commonwealth games
Independent
Travel Shop
the manor
Up to 70% off luxury travel
on city breaks Find out more
santorini
Up to 70% off luxury travel
on chic beach resorts Find out more
sardina foodie
Up to 70% off luxury travel
on country retreats Find out more
Latest stories from i100
Have you tried new the Independent Digital Edition apps?
Independent Dating
and  

By clicking 'Search' you
are agreeing to our
Terms of Use.

iJobs Job Widget
iJobs General

Employment Solicitor

Highly Competitive Salary: Austen Lloyd: MANCHESTER - Senior Employment Solici...

Senior Risk Manager - Banking - London - £650

£600 - £650 per day: Orgtel: Conduct Risk Liaison Manager - Banking - London -...

Commercial Litigation Associate

Highly Attractive Package: Austen Lloyd: CITY - COMMERCIAL LITIGATION - GLOBAL...

Systems Manager - Dynamics AX

£65000 - £75000 per annum + Benefits: Progressive Recruitment: The client is a...

Day In a Page

Evan Davis: The BBC’s wolf in sheep’s clothing to take over at Newsnight

The BBC’s wolf in sheep’s clothing

What will Evan Davis be like on Newsnight?
Finding the names for America’s shame: What happens to the immigrants crossing the US-Mexico border without documents who never make it past the Arizona desert?

Finding the names for America’s shame

The immigrants crossing the US-Mexico border without documents who never make it past the Arizona desert
Inside a church for Born Again Christians: Speaking to God in a Manchester multiplex

Inside a church for Born Again Christians

As Britain's Anglican church struggles to establish its modern identity, one branch of Christianity is booming
Rihanna, Kim Kardashian and me: How Olivier Rousteing is revitalising the house of Balmain

Olivier Rousteing is revitalising the house of Balmain

Parisian couturier Pierre Balmain made his name dressing the mid-century jet set. Today, Olivier Rousteing – heir to the house Pierre built – is celebrating their 21st-century equivalents. The result? Nothing short of Balmania
Cancer, cardiac arrest, HIV and homelessness - and he's only 39

Incredible survival story of David Tovey

Tovey went from cooking for the Queen to rifling through bins for his supper. His is a startling story of endurance against the odds – and of a social safety net failing at every turn
Backhanders, bribery and abuses of power have soared in China as economy surges

Bribery and abuses of power soar in China

The bribery is fuelled by the surge in China's economy but the rules of corruption are subtle and unspoken, finds Evan Osnos, as he learns the dark arts from a master
Commonwealth Games 2014: Highland terriers stole the show at the opening ceremony

Highland terriers steal the show at opening ceremony

Gillian Orr explores why a dog loved by film stars and presidents is finally having its day
German art world rocked as artists use renowned fat sculpture to distil schnapps

Brewing the fat from artwork angers widow of sculptor

Part of Joseph Beuys' 1982 sculpture 'Fettecke' used to distil schnapps
BBC's The Secret History of Our Streets reveals a fascinating window into Britain's past

BBC takes viewers back down memory lane

The Secret History of Our Streets, which returns with three films looking at Scottish streets, is the inverse of Benefits Street - delivering warmth instead of cynicism
Joe, film review: Nicolas Cage delivers an astonishing performance in low budget drama

Nicolas Cage shines in low-budget drama Joe

Cage plays an ex-con in David Gordon Green's independent drama, which has been adapted from a novel by Larry Brown
How to make your own gourmet ice lollies, granitas, slushy cocktails and frozen yoghurt

Make your own ice lollies and frozen yoghurt

Think outside the cool box for this summer's tempting frozen treats
Ford Fiesta is UK's most popular car of all-time, with sales topping 4.1 million since 1976

Fiesta is UK's most popular car of all-time

Sales have topped 4.1 million since 1976. To celebrate this milestone, four Independent writers recall their Fiestas with pride
10 best reed diffusers

Heaven scent: 10 best reed diffusers

Keep your rooms smelling summery and fresh with one of these subtle but distinctive home fragrances that’ll last you months
Commonwealth Games 2014: Female boxers set to compete for first time

Female boxers set to compete at Commonwealth Games for first time

There’s no favourites and with no headguards anything could happen
Five things we’ve learned so far about Manchester United under Louis van Gaal

Five things we’ve learned so far about United under Van Gaal

It’s impossible to avoid the impression that the Dutch manager is playing to the gallery a little