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Patrick Cockburn: I hoped my son would recover soon. He did not

The illness struck with terrifying rapidity over the course of a few weeks

At the time my son Henry was diagnosed as having schizophrenia early in 2002, I knew very little about the illness. Almost the only thing I did know was that it did not mean having a split personality.

Sitting in my hotel room in Brighton, where Henry was in a clinic, I spent hours at my laptop finding out as much as I could about the illness. I was dismayed to discover that an eminent American doctor had said that what cancer was to physical medicine, schizophrenia was to mental illness.

I had already seen its shattering impact. Henry was a talented, prize-winning artist before he became ill and the illness struck with terrifying rapidity over the course of a few weeks, though Henry later explained to me how it had gestated over a much longer period. The first sign that something was wrong came, in retrospect, when I noticed during a visit to Venice in the summer of 2001 that Henry, who had always drawn quickly and fluently, was having difficulty in sketching the human figure.

In January 2002 Henry started going barefoot and adopted a vegan diet, which might have been student eccentricity. But he also began to fear mobile phones, clocks and even Brighton's green-and-white taxis. He climbed up a high wall at Brighton station and passers-by called the police, who asked him if he had seen visions. Henry said he had not, though he later told me that he had seen a golden Buddha, though only for an instant, as he sat on Brighton beach. Later he watched a tree move its branches and speak to him.

Finally, on 9 February, Henry had set off for his home in Canterbury, walking barefoot along the foreshore until he got to Newhaven, where he swam the near freezing water of the estuary. Picked up by fishermen who feared he was suffering from hypothermia, he was taken in an ambulance to Brighton hospital. I was in Afghanistan at the time and rushed back to see him.

I was told early on by doctors that one-third of people diagnosed as having schizophrenia have only one attack and recover; one-third have recurrent attacks but eventually show signs of recovery; and one-third never get better. In fact it is more complicated than that, but at first I hoped Henry would be one of the lucky third who recover fully.

This did not happen. Often Henry seemed to disappear into his own world of dreams and nightmares. Over the last year or 18 months he seems to be more in control, referring to what he calls his "polka-dot days" when voices and visions briefly return. He finds these painful and calls them "the torments", though he shows great courage in sustaining these agonies.

When Henry and I both wrote about what happened to him last September, I was struck by how many people wrote intelligent and touching letters to me about this cruellest of illnesses. It struck me also that its treatment, and the treatment of other mental illnesses, were about at the stage that treatment of physical illnesses had reached a century ago.

The causes of schizophrenia are suspected, but not known for certain. There are medications which control but do not cure it. Studies seem to bring understanding of the illness closer, only for others to disprove or qualify their results. Progress has been very slow.

Patrick and Henry Cockburn are writing a book about Henry's experiences, to be published in 2010

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Comments

Within the curse a gift
[info]rossolimo wrote:
Thursday, 2 July 2009 at 01:23 am (UTC)
Read the work of Stanislav Grov. There are no easy answers, but, like any mental illness, it helps if one can find meaning and purpose in the experience. Well, that applies to any experience I suspect. Grov uses a term 'spiritual emergency' as in, the emergence of the spiritual Self. The term schizophrenia is applied to a variety of states and unfortunately it tends to be a 'sentence' when it should not be. People with this condition are clearly 'open' to all sorts of information which the brain would normally block. Unless one has an understanding of the greater complexity of life and the brain, it is hard to understand this condition as anything more than an illness. The human brain constantly 'blocks out' information from the energy field in which we live and of which we are a part.... those with schizophrenia are less able to do this. What they experience is called 'insanity' and clearly, it creates dysfunction, when in fact, what they experience is 'more' of how the world is than the less with which we normally live. Beginning from a basic premise that the brain is 'plastic' in nature and that it acts as a receiver for mind, it is possible to then understand the condition and work with it. Within the curse there is a gift.
[info]dravazed wrote:
Thursday, 2 July 2009 at 02:19 am (UTC)
I highly recommend a book by a lady who lives with schizophrenia. It is courageous and well-written.

The name of the book is The Center Cannot Hold, and the link at Amazon, should you care to find out more about this text, is as follows:

http://www.amazon.com/Center-Cannot-Hold-Journey-Through/dp/1401309445/ref=sr_1_1?ie=UTF8&s=books&qid=1246501075&sr=1-1

I certainly wish the best to the Cockburns.
Dear Henry and Patrick,
[info]ninahk wrote:
Thursday, 2 July 2009 at 08:18 am (UTC)
my brother suffers from a bipolar disorder. He studied architecture before, he is also a great artist but he had to quit school because the illness struck him when he was about 20.
I hope to get hands on your book sometime.
I wish you all the best.
nina
I hoped my son will recover
[info]juliandbsmith wrote:
Thursday, 2 July 2009 at 08:33 am (UTC)

My son didn't recover either, he is now on medication for life. The state supports him basically but as with some many others employment is impossible not because he couldn't do some work but because employment today is so driven and inflexible. We prefer to throw the less able onto the scrap-heap of unemployment rather than deal with the real cost of inclusion.

The further education system has also been decimated by the drive toward narrow minded uber-vocationalism, in a desperate attempt to boost employment, the range of "soft" courses has been slashed thus effectively removing the socialising functions of eduction from the most vunerable and elderly. Surely it is better to provide free evening classes than to boost social care costs, or even worst slash those also, leaving families, the police and the NHS to pick up the pieces.

We need to abolish the target driven, business obessed approach and revitilise work, social care and education. Whilst we are there we also need to do something about benefits, a life with illness is one thing but a life without hope of advancement does nothing to support the mentally ill.
inside the experience
[info]susiet99 wrote:
Thursday, 2 July 2009 at 09:24 am (UTC)
Some missives from the front line of schizophrenia in the form of poems and art by the much-missed chris baily, and memories from his bereft family. www.chrisbaily.blogspot.com/
THANK YOU
[info]brinksman wrote:
Thursday, 2 July 2009 at 09:39 am (UTC)
Thank you, Patrick for such an insightful and touching article.
www.millarcrime.com
[info]artypharty wrote:
Thursday, 2 July 2009 at 05:47 pm (UTC)
My daughter also has been diagnosed with schizophrenia. She's been living with it for 10 years if you can call it 'living'.

She was also a great artist & no longer can concentrate on anything for more than a few seconds. I just hope that one day they will find a drug that can stabilise her and give her some peace. Maybe then she will be come a great artist once again.

All the best Henry, I hope everything works out well for you.

Pat
Stanislav Grov
[info]susiemusic wrote:
Friday, 3 July 2009 at 11:36 am (UTC)
Rossolimo, I liked your comment which referred to Stanislav Grov's work. I was diagnosed with bipolar several years ago, and while psychiatry tends to dismiss some of the incredible, spiritual and mind-opening experiences which came to me as part of this condition, reading Grov reassured me that these experiences were valid. Having bipolar has often been difficult and I have suffered, but there have been some amazing times. I am a musician, and I think many creative people develop conditions such as bipolar disorder and schizophrenia, maybe because they are very open and sensitive and can access realms which others cannot.
Marcia
[info]hopeful789 wrote:
Sunday, 5 July 2009 at 06:09 pm (UTC)
My brother has dealt with schizophrenia and bi-polar (diagnosed as schizoaffective disorder) since the 1970's. I would like to share with others that after many years of his up and down, spiraling problems that less than a year ago his doctor finally suggested that he take all his meds once a day at night-time. Only med change was a prescribed time-released Depakote (he was previously taking Depakote but wasn't time-released). This meds routine has been like a miracle for him as well as for the family. He is finally stablized and has been since this medicine change. The doctor stated that they are hoping the FDA will approve more drugs that are taken only once a day as it is so difficult for all peoples to remember to take medicines at different intervals throughout a day. He is also prescribed Ativan to take only as needed, which is rarely. Our further hope is that there will be more medicines that have no TD risks. My brother's life has not been what he nor we expected but...most importantly he is one of the nicest people I know, has become one of my best friends in life and is a help and a blessing in helping me care for our elderly father.
Schizophrenia
[info]charente wrote:
Tuesday, 7 July 2009 at 02:53 pm (UTC)
I would urge everyone who is interested in a treatment for schizophrenia to read everything they can find on the net using the key words 'Dr Abram Hoffer', 'orthomolecular psychiatry', 'nutritional supplements for schizophrenia'. My son has been drugged for seventeen years, if he was going to get well with medication it would have happened by now. I honestly believe that sufferers can be greatly helped by the right combination of supplements, in particular vitamin B3 and Omega oils as well as several others. I have been unable to find anyone in europe doing research into the natural treatment of schizophrenia, pharmaceutical companies certainly aren't going to go this route, they want a magic bullet drug to make trillions of dollars in profit. Vitamins and supplements already available in the marketplace are not going to do anything for the share price of the big pharmas. The medical profession seems to learn only how to treat symptoms with the use of drugs, I think there is a better way.

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