Patrick Cockburn: I hoped my son would recover soon. He did not
The illness struck with terrifying rapidity over the course of a few weeks
At the time my son Henry was diagnosed as having schizophrenia early in 2002, I knew very little about the illness. Almost the only thing I did know was that it did not mean having a split personality.
Sitting in my hotel room in Brighton, where Henry was in a clinic, I spent hours at my laptop finding out as much as I could about the illness. I was dismayed to discover that an eminent American doctor had said that what cancer was to physical medicine, schizophrenia was to mental illness.
I had already seen its shattering impact. Henry was a talented, prize-winning artist before he became ill and the illness struck with terrifying rapidity over the course of a few weeks, though Henry later explained to me how it had gestated over a much longer period. The first sign that something was wrong came, in retrospect, when I noticed during a visit to Venice in the summer of 2001 that Henry, who had always drawn quickly and fluently, was having difficulty in sketching the human figure.
In January 2002 Henry started going barefoot and adopted a vegan diet, which might have been student eccentricity. But he also began to fear mobile phones, clocks and even Brighton's green-and-white taxis. He climbed up a high wall at Brighton station and passers-by called the police, who asked him if he had seen visions. Henry said he had not, though he later told me that he had seen a golden Buddha, though only for an instant, as he sat on Brighton beach. Later he watched a tree move its branches and speak to him.
Finally, on 9 February, Henry had set off for his home in Canterbury, walking barefoot along the foreshore until he got to Newhaven, where he swam the near freezing water of the estuary. Picked up by fishermen who feared he was suffering from hypothermia, he was taken in an ambulance to Brighton hospital. I was in Afghanistan at the time and rushed back to see him.
I was told early on by doctors that one-third of people diagnosed as having schizophrenia have only one attack and recover; one-third have recurrent attacks but eventually show signs of recovery; and one-third never get better. In fact it is more complicated than that, but at first I hoped Henry would be one of the lucky third who recover fully.
This did not happen. Often Henry seemed to disappear into his own world of dreams and nightmares. Over the last year or 18 months he seems to be more in control, referring to what he calls his "polka-dot days" when voices and visions briefly return. He finds these painful and calls them "the torments", though he shows great courage in sustaining these agonies.
When Henry and I both wrote about what happened to him last September, I was struck by how many people wrote intelligent and touching letters to me about this cruellest of illnesses. It struck me also that its treatment, and the treatment of other mental illnesses, were about at the stage that treatment of physical illnesses had reached a century ago.
The causes of schizophrenia are suspected, but not known for certain. There are medications which control but do not cure it. Studies seem to bring understanding of the illness closer, only for others to disprove or qualify their results. Progress has been very slow.
Patrick and Henry Cockburn are writing a book about Henry's experiences, to be published in 2010
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Comments
The name of the book is The Center Cannot Hold, and the link at Amazon, should you care to find out more about this text, is as follows:
http://www.amazon.com/Center-Cannot-Hol
I certainly wish the best to the Cockburns.
I hope to get hands on your book sometime.
I wish you all the best.
nina
My son didn't recover either, he is now on medication for life. The state supports him basically but as with some many others employment is impossible not because he couldn't do some work but because employment today is so driven and inflexible. We prefer to throw the less able onto the scrap-heap of unemployment rather than deal with the real cost of inclusion.
The further education system has also been decimated by the drive toward narrow minded uber-vocationalism, in a desperate attempt to boost employment, the range of "soft" courses has been slashed thus effectively removing the socialising functions of eduction from the most vunerable and elderly. Surely it is better to provide free evening classes than to boost social care costs, or even worst slash those also, leaving families, the police and the NHS to pick up the pieces.
We need to abolish the target driven, business obessed approach and revitilise work, social care and education. Whilst we are there we also need to do something about benefits, a life with illness is one thing but a life without hope of advancement does nothing to support the mentally ill.
www.millarcrime.com
She was also a great artist & no longer can concentrate on anything for more than a few seconds. I just hope that one day they will find a drug that can stabilise her and give her some peace. Maybe then she will be come a great artist once again.
All the best Henry, I hope everything works out well for you.
Pat