Can't you see the world has just caved in?

Four years after enduring cancer of the breast and ovaries, Judy Vittoz suddenly developed secondary symptoms of the illness ...

This diary began a year ago. The discovery of a row of nodules at my throat, like a necklace of peas beneath the surface of the skin, had snapped the naive assumption that, having survived primary cancers of the breast and ovaries, I could now travel, hopefully, towards old age.

Recording the progress of a terminal disease may seem a somewhat macabre pursuit, particularly for an architect who, for 20 years, has written nothing but official reports and letters, but I make no apology. It is better than waking an exhausted partner in the wee small hours to share fear, despair or hysteria, better than hurling crockery at a wall. It is some part of my fight for life. Maybe the relentless task of keeping a diary would eke out the days, I thought, make it all last longer, give researchers time to find answers. In the meantime, best ignore the questions that have no answers: why me, when, what the bloody hell for?

The first cancer to attack me was at the breast. It was October 1989 and I was 41. I had no lumps; I never had what I understood as a physical embodiment of breast cancer. Patrick felt something odd in the side of my stomach and I went to the GP. Six weeks later, with no news of a hospital appointment, a doctor friend urged me to go privately. The consultant at our local hospital expressed concern about an inverting nipple, which I'd dismissed as a sign of ageing. And then, suddenly, I was faced with consent forms for laparotomy and biopsy and, if necessary, hysterectomy and/or mastectomy. I agreed to all but the mastectomy. My uterus survived and the rest of me relaxed. I felt in the peak of health. But a month later they told us that the biopsy had shown invasive ductile carcinoma, requiring radical mastectomy.

We clutched at straws and sought second and third opinions. All confirmed that mastectomy was unavoidable. The left breast was removed on 4 January, 1990, two days after our 19th wedding anniversary. They gave me an expander, so I looked "normal", and then six months' follow-up chemotherapy.

Four years passed and just as we began to think I would be OK, New Year 1994, the alarm bells began again. My waist had boomed to a size 18. This was not, as I dangerously presumed, a sign of premature menopause, but primary cancer of the ovaries. Within a fortnight, I had had a hysterectomy. Still, apart from some temporary side-effects, I felt fit and returned to family life and my job as an architect as soon as I could.

Ten months later it was half-term. Patrick had stayed in Manchester, minding the practice, while I took the boys (Daniel, then 15, Roland 10 and Adam 7) to the south coast, to visit my mother and sisters. It was a blissfully happy week. The sun shone and we explored castles and walked along the cliff tops at Beachy Head. When we went ten-pin bowling, gran, who's 76, flung herself down the lane as energetically as any of the boys. It was coming out of McDonald's afterwards that I felt first one, then a little chain of lumps around my neck. There have been other little lumps, I told myself. It's a passing infection, I hoped, and said nothing to cloud the holiday.

3 November

My GP sends me for tests.

7 November

Maman phones and says whatever the results, we must be sure to get a second opinion in Paris. (Should explain that Patrick is French, his mother a retired obstetrician.)

13 November

Find Roland in a heap on the stairs. "It's not fair," he roars. He isn't talking about the new trainers he'd lost on the bus. Daniel, our oldest, looking fixedly at the side of the sofa, says: "If there's anyone Up There, he's got a mighty strange sense of humour." Adam raises his eyes to the ceiling and purses his lips with a sigh. I dread telling my mother.

15 November

Over the years, Patrick and I have developed a friendship with Tony, our consultant oncologist. At the clinic today, when not him, but a junior doctor bustles into our little cell, we breathe a sigh of relief. This cannot be the bearer of bad tidings. As he flicks lightly through the top inch of the file, exchanging pleasantries, it begins to dawn on us that this young man is blissfully unaware of any test, let alone of test results. I timorously mention results. Junior doctor scuttles off to be replaced by Big Cheese,Tony, who'd been away and not caught up with these latest developments. Caught wrong-footed, for once he forgets the professional flannel and blurts out the bad news.

We reel out of the hospital, dazed, into a warm autumnal day that is careless of our trivial catastrophe. Unable to confront work, we decide to confront the humdrum practicalities of life instead. Thus we find ourselves in the Tesco car park awash with tears on our little raft of despair (Ford Granada).

A well-meaning acquaintance spots us, (though, presumably, not the tears coursing down our cheeks) and knocks cheerfully on the passenger window. Patrick continues to stare fixedly through the windscreen, as if concentrating on blasting down the motorway at 90mph.

Friend (brightly): "How are you?"

Me (vocal cords lumpy): "Not so good" (isn't it fucking obvious?).

Friend (curiously): "What's the matter?"

Me (vocal cords twanging): "I've got secondaries" (the world has just caved in, can't you see?).

Friend (as if to child with bumped knee): "There, there, it'll be all right."

Me (vocal cords raw): "I'm not so sure" (please, please go).

Friend: "Don't worry. My friend Brangwen was diagnosed terminal and she went on for a long time."

Me (clutching at straws) "How long for?"

Friend (reassuringly): "Another 12 years."

Me (46 + 12 = 58. But I want another 30).

Awkward pause. Friend moves shopping bag to other arm.

Friend: "Sorry, but I've got to get on with my shopping. Just popped out in my lunch break."

Me (smiles): "That's OK, you go on" (for Crissakes just go).

Patrick and I buy pizza for dinner.

16 November

Tony is reluctant to consider all the ramifications without further tests. He needs to establish the source of the secondaries. Of the two primary cancers I've had, the breast was more advanced than the ovarian, so it's more likely to come from there. Since each migrates in different ways to produce secondaries, each requires different forms of treatment.

21 November

Bone scan. The most incongruous thing about a bone scan is that for a day the victim is radio-active. The first sign of it is in the waiting room, where the seats are a good metre apart. And there are dire warnings on the walls about which WCs patients may use after the injection. For scanning, the patient hugs a metal plate, not unlike a satellite dish, to various parts of the anatomy, with intakes of breath at instructions by a jolly young technician. This one scarcely seems to take breath herself, maintaining instead an inexhaustible supply of patter. Being the second time we'd meet in a few months, I was treated to a fully detailed update of the decorating that her father has been doing in her new house. Seems progress is slow, so I might never get to hear about the decor in the bedrooms.

22 November

Patrick and I make another attempt to confront the conundrum of our sons' education. If we could be sure that I would kick the bucket in, say, six months, we would take the bull by the horns and sail away en famille for a world cruise. But on the other hand, their lives go on, their education must be maintained.

23 November

Tony meets us after normal clinic hours to go through the options. Surgery is ruled out by the little necklace of nodules round my throat - no doubt because I would end up like Frankenstein's monster with bolts through the neck or the head would fall off. Chemotherapy comes at various pitches from standard to high with or without local radio-therapy.

This is a whole new ball-game with a new set of jargon. We set about it with all the enthusiasm that, in my wildest fantasies, I imagine the boys have for learning Latin. And we grapple with this awesome new language, the language of clinical trials.

28 November

Spent most of today trying to arrange cheap flight to Paris for second opinion by friend of Maman, colleague of Tony.

3 December

Whirlwind course through the French system, ultrasound and scans of all organs. The good news is that my bones and organs are clear, the bad that there is an early touch on my right lung. That is significant because the other malfunctions have all been on the left side.

6 December

Thoughts oscillate between the mundane (must water plants, buy more Marmite) and the abstract - for instance, the precise meaning of the word remission.

Oxford Dictionary: 1) The reduction of a prison sentence on account of good behaviour, 2) the remitting of a debt or penalty and 3) a diminution of force, effect or degree (esp of disease or pain).

My mind wanders to an incident that occurred some years ago. We were building a block of flats in the shell of a crumbled mansion. I asked one of the builders to fence off and protect the shrubs, which included a rather fine mock orange bush, a 10-foot Philadelphus. He must have taken his spade to it, because when I returned, the bush was reduced to a 10-inch stub. Contemplating his handiwork with some pride, the builder declared with smug conviction that he had "just set it back a bit". That's what I call remission.

7 December

Tony arrives for dinner. Patrick cooks salmon steaks in a butter sauce, which we eat on our laps while watching a riveting video of Tony's last international conference.

Tony explains the process of various cancer therapies by doodling quaint little graphs (vertical scale ALIVE over horizontal scale TIME, ending in dot, dot, dot and two question marks). This is all part of the new language of High Dose Chemotherapy and essential ingredients of the clinical trials I have agreed to undertake. Tony boasts 100 per cent remission for those who last the course. The treatment is not available on the NHS, and has a horrendous price-tag.

Tony invites us to his wedding in April, which implies he expects me to be on the planet for at least another spring.

9 December

We meet the earnest young doctor who will run the clinical trial. He outlines the sequence of events, giving considered answers to all the questions and progressively confirming the gruelling side-effects. Total hair loss pales into an insignificant vanity when confronted with the possibility of nail loss.

The day ends on a high note of warmth, generated by a women's evening, arranged by friend Kath. If laughter is truly the best medicine, then this one evening should have gone a long way to putting this cancer into remission.

Angela's tales of her latest amateur acting reduced us all to tears. She played the part of a Siamese twin in a most sympathetic, alternative production, conducted in a multi-storey car-park. For a few hours I keep at bay the eyeball-to-eyeball contemplation of various forms of medical Russian roulette.

This is an extract from the writer's diary, which is edited by Judy Meewezen. Some names have been changed. A year on, the writer is still continuing her treatment and keeping her diary.

Have you tried new the Independent Digital Edition apps?
Life and Style
ebooksA superb mix of recipes serving up the freshest of local produce in a delicious range of styles
Life and Style
ebooksFrom the lifespan of a slug to the distance to the Sun: answers to 500 questions from readers
Arts and Entertainment
Hayley Williams performs with Paramore in New York
musicParamore singer says 'Steal Your Girl' is itself stolen from a New Found Glory hit
Ronaldinho signs the t-shirt of a pitch invader
footballProof they are getting bolder
peopleStella McCartney apologises over controversial Instagram picture
William Hague
people... when he called Hague the county's greatest
voicesBy the man who has
More than 90 years of car history are coming to an end with the abolition of the paper car-tax disc
newsThis and other facts you never knew about the paper circle - completely obsolete today
Arts and Entertainment
Ed Sheeran performs at his Amazon Front Row event on Tuesday 30 September
musicHe spotted PM at private gig
Arsene Wenger tried to sign Eden Hazard
footballAfter 18 years with Arsenal, here are 18 things he has still never done as the Gunners' manager
newsFloyd 'Creeky' Creekmore still performed regularly to raise money for local hospitals
indybestKeep extra warm this year with our 10 best bedspreads
people'I’d rather have Fred and Rose West quote my characters on childcare'
Latest stories from i100
Have you tried new the Independent Digital Edition apps?
Independent Dating

By clicking 'Search' you
are agreeing to our
Terms of Use.

ES Rentals

    iJobs Job Widget
    iJobs General

    Trainee Recruitment Consultant

    £18000 - £23000 per annum + OTE: SThree: Real Staffing Group is seeking Traine...

    Year 6 Teacher (interventions)

    £120 - £140 per day: Randstad Education Leeds: We have an exciting opportunity...

    PMLD Teacher

    Competitive: Randstad Education Manchester: SEN Teacher urgently required for ...

    Real Estate Solicitor 2+PQE - City

    Highly Competitive Salary: Austen Lloyd: CITY - HIGH VALUE REAL ESTATE / RESID...

    Day In a Page

    Ebola outbreak: The children orphaned by the virus – then rejected by surviving relatives over fear of infection

    The children orphaned by Ebola...

    ... then rejected by surviving relatives over fear of infection
    Pride: Are censors pandering to homophobia?

    Are censors pandering to homophobia?

    US film censors have ruled 'Pride' unfit for under-16s, though it contains no sex or violence
    The magic of roundabouts

    Lords of the rings

    Just who are the Roundabout Appreciation Society?
    Why do we like making lists?

    Notes to self: Why do we like making lists?

    Well it was good enough for Ancient Egyptians and Picasso...
    Hong Kong protests: A good time to open a new restaurant?

    A good time to open a new restaurant in Hong Kong?

    As pro-democracy demonstrators hold firm, chef Rowley Leigh, who's in the city to open a new restaurant, says you couldn't hope to meet a nicer bunch
    Paris Fashion Week: Karl Lagerfeld leads a feminist riot on 'Boulevard Chanel'

    Paris Fashion Week

    Lagerfeld leads a feminist riot on 'Boulevard Chanel'
    Bruce Chatwin's Wales: One of the finest one-day walks in Britain

    Simon Calder discovers Bruce Chatwin's Wales

    One of the finest one-day walks you could hope for - in Britain
    10 best children's nightwear

    10 best children's nightwear

    Make sure the kids stay cosy on cooler autumn nights in this selection of pjs, onesies and nighties
    Manchester City vs Roma: Five things we learnt from City’s draw at the Etihad

    Manchester City vs Roma

    Five things we learnt from City’s Champions League draw at the Etihad
    Martin Hardy: Mike Ashley must act now and end the Alan Pardew reign

    Trouble on the Tyne

    Ashley must act now and end Pardew's reign at Newcastle, says Martin Hardy
    Isis is an hour from Baghdad, the Iraq army has little chance against it, and air strikes won't help

    Isis an hour away from Baghdad -

    and with no sign of Iraq army being able to make a successful counter-attack
    Turner Prize 2014 is frustratingly timid

    Turner Prize 2014 is frustratingly timid

    The exhibition nods to rich and potentially brilliant ideas, but steps back
    Last chance to see: Half the world’s animals have disappeared over the last 40 years

    Last chance to see...

    The Earth’s animal wildlife population has halved in 40 years
    So here's why teenagers are always grumpy - and it's not what you think

    Truth behind teens' grumpiness

    Early school hours mess with their biological clocks
    Why can no one stop hackers putting celebrities' private photos online?

    Hacked photos: the third wave

    Why can no one stop hackers putting celebrities' private photos online?