Scientists ask for sufferers of the asbestos-related cancer mesothelioma to step forward to boost research

 

Scientists looking into possible treatments for the asbestos-related cancer mesothelioma are asking patients and their families to help steer future clinical research.

A survey has been launched aimed at better understanding the diagnosis, treatment and care of people with the disease, dubbed the “hidden killer” by the Health and Safety Executive.

Researchers hope that patients, carers and clinicians will raise concerns about their experience and allow for the compilation of 10 aspects of mesothelioma which could benefit from research.

The survey is being carried out as part of a project by the Priority Setting Partnership which is funded by the National Institute for Health Research and the results are set to be published later this year.

“It is vital that we gather and listen to the views of as many people as possible so everyone knows the topics that are a priority for clinical research,” says Professor Dame Sally C. Davies, chief medical officer and chief scientific adviser at the Department of Health.

“Mesothelioma research has been identified as an important area and everyone needs to hear what patients, carers, families and healthcare professionals believe are the most important unanswered questions around the diagnosis, treatment and care of mesothelioma.”

Mesothelioma is a cancer of the membrane which covers the internal organs and it is currently incurable. Patients live, on average, for eight months following diagnosis. There is a direct link between the disease and the inhalation of asbestos fibres and it can take around 30 years for the effects to be seen.

The latest government figures show the disease caused 2,291 deaths in Britain in 2011 and the disease is set to reach its peak in 2016. Yet research funding is low. According to Lord Alton of Liverpool, the British Lung Foundation invested £1 million in 2011 but the government did not inject any funding.

The survey is being supported by a number of health organisations including the British Lung Foundation, Mesothelioma UK, The Mick Knighton Mesothelioma Research Fund, Asbestos Victims Support Groups Forum UK, The June Hancock Mesothelioma Research Fund, and Cumbria Asbestos-Related Disease Support.

Graham Sherlock-Brown, who has been diagnosed with mesothelioma, said: “It is essential that research money is put into finding ways to relieve the suffering caused by this aggressive disease.

“Progress in treatment is long overdue and mesothelioma victims deserve far better – very few survive past five years and mesothelioma will continue to claim victims as long as asbestos is present in the UK.

“That’s why I’m pleased to see the launch of this important survey, which gives patients and carers a much-needed voice.”

Asbestos was widely used in commercial buildings, homes and schools and was hailed for its strength and fire retardant properties.

Following a confirmed link between asbestos and mesothelioma, blue and brown asbestos was banned in the UK in 1985. White asbestos was banned in 1999 although it remains in many buildings to this day.

New cases of mesothelioma have increased fourfold since the 1980s. Asbestos exposure can also cause asbestosis, plural plaques, plural thickening and lung cancer.

The survey is available at www.psp.nihr.ac.uk/mesothelioma/survey

News
peopleHowards' Way actress, and former mistress of Jeffrey Archer, was 60
Sport
Chelsea are interested in loaning out Romelu Lukaku to Everton again next season
sport
News
Robyn Lawley
people
Life and Style
Troy Baker and Ashley Johnson voice the show’s heroes
gamingOnce stilted and melodramatic, Hollywood is giving acting in video games a makeover
PROMOTED VIDEO
Life and Style
ebookA wonderful selection of salads, starters and mains featuring venison, grouse and other game
News
people
News
i100
Life and Style
Phones will be able to monitor your health, from blood pressure to heart rate, and even book a doctor’s appointment for you
techCould our smartphones soon be diagnosing diseases via Health Kit and Google Fit?
News
people
Extras
indybest
Sport
Usain Bolt confirms he will run in both the heats and the finals of the men's relay at the Commonwealth Games
commonwealth games
Life and Style
tech'World's first man-made leaves' could use photosynthesis to help astronauts breathe
Independent
Travel Shop
the manor
Up to 70% off luxury travel
on city breaks Find out more
santorini
Up to 70% off luxury travel
on chic beach resorts Find out more
sardina foodie
Up to 70% off luxury travel
on country retreats Find out more
Latest stories from i100
Have you tried new the Independent Digital Edition apps?

ES Rentals

    Independent Dating
    and  

    By clicking 'Search' you
    are agreeing to our
    Terms of Use.

    iJobs Job Widget
    iJobs General

    Senior Investment Accounting Change Manager

    £600 - £700 per day + competitive: Orgtel: Senior Investment Accounting Change...

    Microsoft Dynamics AX Functional Consultant

    £65000 - £75000 per annum + benefits: Progressive Recruitment: A rare opportun...

    Tax Solicitor

    £40000 - £70000 per annum + EXCELLENT: Austen Lloyd: Tax Solicitor An excel...

    Microsoft Dynamics AX Support Analyst

    £45000 - £50000 per annum + benefits: Progressive Recruitment: This is an exce...

    Day In a Page

    Save the tiger: The day America’s love of backyard tigers led to a horrific bloodbath

    The day America’s love of backyard tigers led to a horrific bloodbath

    With only six per cent of the US population of these amazing big cats held in zoos, the Zanesville incident in 2011 was inevitable
    Once stilted and melodramatic, Hollywood is giving acting in video games a makeover

    Acting in video games gets a makeover

    David Crookes meets two of the genre's most popular voices
    Could our smartphones soon be diagnosing diseases via Health Kit and Google Fit?

    Could smartphones soon be diagnosing diseases?

    Health Kit and Google Fit have been described as "the beginning of a health revolution"
    10 best over-ear headphones

    Aural pleasure: 10 best over-ear headphones

    Listen to your favourite tracks with this selection, offering everything from lambskin earmuffs to stainless steel
    Save the tiger: The animals bred for bones on China’s tiger farms

    The animals bred for bones on China’s tiger farms

    The big cats kept in captivity to perform for paying audiences and then, when dead, their bodies used to fortify wine
    A former custard factory, a Midlands bog and a Leeds cemetery all included in top 50 hidden spots in the UK

    A former custard factory, a Midlands bog and a Leeds cemetery

    Introducing the top 50 hidden spots in Britain
    Ebola epidemic: Plagued by fear

    Ebola epidemic: Plagued by fear

    How a disease that has claimed fewer than 2,000 victims in its history has earned a place in the darkest corner of the public's imagination
    Chris Pratt: From 'Parks and Recreation' to 'Guardians of the Galaxy'

    From 'Parks and Recreation' to 'Guardians of the Galaxy'

    He was homeless in Hawaii when he got his big break. Now the comic actor Chris Pratt is Hollywood's new favourite action star
    How live cinema screenings can boost arts audiences

    How live cinema screenings can boost arts audiences

    Broadcasting plays and exhibitions to cinemas is a sure-fire box office smash
    Shipping container hotels: Pop-up hotels filling a niche

    Pop-up hotels filling a niche

    Spending the night in a shipping container doesn't sound appealing, but these mobile crash pads are popping up at the summer's biggest events
    Native American headdresses are not fashion accessories

    Feather dust-up

    A Canadian festival has banned Native American headwear. Haven't we been here before?
    Boris Johnson's war on diesel

    Boris Johnson's war on diesel

    11m cars here run on diesel. It's seen as a greener alternative to unleaded petrol. So why is London's mayor on a crusade against the black pump?
    5 best waterproof cameras

    Splash and flash: 5 best waterproof cameras

    Don't let water stop you taking snaps with one of these machines that will take you from the sand to meters deep
    Louis van Gaal interview: Manchester United manager discusses tactics and rebuilding after the David Moyes era

    Louis van Gaal interview

    Manchester United manager discusses tactics and rebuilding after the David Moyes era
    Will Gore: The goodwill shown by fans towards Alastair Cook will evaporate rapidly if India win the series

    Will Gore: Outside Edge

    The goodwill shown by fans towards Alastair Cook will evaporate rapidly if India win the series