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A first-class recovery: From hopeless case to graduate

Eleanor Longden was a diagnosed schizophrenic and heard menacing voices in her head for 10 years. Now, she has fought back and has graduated with a brilliant honours degree in psychology

By Nina Lakhani

Eleanor Longden was 'labelled, medicated and left' when she first sought help

ASADOUR GUZELIAN

Eleanor Longden was 'labelled, medicated and left' when she first sought help

Eleanor Longden was revising for her final university exams in May when she was interrupted by a hostile middle-aged man, who barked: "Stop! You can't do this; you're going to fail. You're not good enough to get a degree." Nine other people joined his tirade in a chorus of noisy abuse as Ms Longden, 27, tried to concentrate on studying.

"You know what?" she replied. "You're right: I do need to stop for a break. Thanks for reminding me."

Ms Longden has been hearing the same critical, often menacing, internal voices for about 10 years. Every day, the dominant male speaks to her in an authoritative tone. The others back him up and the messages are always the same: you're not good enough; why bother with anything when you're such a failure? Except that she is not. She recently graduated from Leeds University with a first-class honours degree in psychology, the highest ever awarded by the department. She now works part-time with people who are hearing voices and is preparing for her PhD next year.

But it has been a long, hard struggle to where she is now. The psychiatrists and mental health nurses Ms Longden first encountered agreed with her voices. She was diagnosed with schizophrenia, forced to take high doses of powerful medication and written off as a hopeless case.

"My family mourned me as if I were dead," said Ms Longden, from Bradford. "They were told that I had a degenerative brain disease and they should prepare themselves for the worst as I might end up in a care home. I was told there was no hope, that there was nothing I could do apart from take medication." How did she go from a hopeless, mentally ill patient to a brilliant academic? A new wonder drug? A lobotomy? Years of therapy?

It was much simpler than that. She was referred to a consultant psychiatrist, Dr Pat Bracken, who encouraged her to listen to her voices and try to understand what they meant. He helped her to reduce her medication so that she could think more clearly. Slowly she worked out the connection between previous traumatic experiences and the messages the voices communicate. She also discovered her voices were worse when she was stressed. "This was the first time anyone in the psychiatric system had talked about recovery. Before that I'd been labelled, medicated and left; my past didn't matter and I had no future."

Yet between 4 and 10 per cent of the population hear voices and fewer than half of these people ever see a psychiatrist, according to research by the Hearing Voices Network. Between 70 to 90 per cent of voice-hearers do so after traumatic experiences.

Voices can be heard in the head, through the ears or through the environment. Conventional psychiatry tries to eradicate them using medication. But a growing number of critical psychiatrists, psychologists and voice-hearers try to listen, understand and accept them.

Dr Bracken, the director of mental health services in West Cork, Ireland, said: "As professionals we need to help people who are depressed or dominated by voices to find a path out of that state. That could be through medication, therapy, religion or creativity. It is completely wrong to try to use one template for everyone."

Ms Longden now has an agreement with her voices to listen and respond to them at 8pm for half an hour. If they come earlier she reminds them of the agreement. It works. She hears menacing voices every day, but fits them into her busy life. Talking to them hasn't made them worse. Stopping her medication hasn't made her dangerous. Yet some psychiatrists would section her and force her to take medication.

She said: "My original psychiatrist told me I would have been better off with cancer because it was easier to cure. She still says that to people. What happened to me was catastrophic, and I survived only because of luck. If I had lived one street to the right, I wouldn't have been referred to Pat Bracken. That can't be how people's lives are determined. I'm not anti-medication; I'm pro-choice. Hearing voices is like left-handedness; it's a human variation, not open to cure, just coping."

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(no subject) - [info]tuio2003 - Monday, 26 October 2009 at 12:23 am (UTC) Expand
Eleanor Longden: First Class Recovery
[info]judithhaire wrote:
Monday, 26 October 2009 at 05:28 pm (UTC)
I have not met Eleanor but am in communication with her and this I am very proud of. I first heard voices when grieving for my Nan whose funeral I was denied access to. I was fourteen and was medicated at that time as bereavement counselling was not available. I'm 53 now and like Eleanor have in the past taken vast quantities of medication. I've also had electro convulsive therapy. I also developed cataracts in my eyes from one of the medications I took. I found it cathartic to write about my experiences in my book Don't Mind Me and this catharsis empowered me to find my voice and talk more freely about my past and traumas and campaign to raise awareness of voice hearing - the shock of realising there is really nothing wrong with me or and never really was anything wrong with me, is an enormous one, and makes me more determined to keep campaigning until the world comes to terms with the enormous strides that have been made in assisting voice hearers on their journey to recovery;
I am sharing the link to my website http://www.judithhaire.vpweb.co.uk
It is important to proceed to try to find ways and means t
[info]tapanpal wrote:
Tuesday, 27 October 2009 at 09:20 am (UTC)
tapan pal Says:
It is important to proceed to try to find ways to understand a person's apparent unusual behaviour and experiences no matter how catastropic it may be, by allowing the person to help us understand one's present language of expressions. It is all about getting lost Trust back into one;s self even to start any little step towards issues.

It is very important that how medical model explains its assumptive theory of speculation depending on its theory that biological damage cuses psychosis, schizophrenia, depression, hearing voices, where none of these have no scientific basis or evidences of any work done but dogmatically speculative in nature.

It is also important to understand we as carer or professionals cannot have an agenda imposed on a person needing help by dictum of what book says why a person going through such difficult time in varying degrees. It is crucial we help a person to help us to understand what a person going through and this is the care pathway in the roadtorecovery, a joint venture, not easy but the only way forward.

I am in regular work with people from various different spectrum and do work effectively and creatively to attend people.

Rufus May, Eleanor Longden, Dolly Sen, Louisa Pembroke, Ivan Tyrell, Dr Joanna Moncrief can explain more.

It is much more important to study and be honest with the impact of neuroleptic medicatins and their ACTUAL metabolism and pathways to work in any ones body and healt. They all are kind of sedative in nature basically, robbing of normal thinking process to deal with unresolved issues but temporarily keeping someone calm and quiet in appearance assuring the professionals as manageable. The whole idea of use of meds is so erroneous from the start, is all about managing eefects of someone’s behaviour and addressing some one’s source of issues.

am founder member of Soterianetwork.

07956577095

Oct 27 4:46 AM

tapan pal Says:


Sorry about my typographical error in my earlier paragraph last line as I meant to say’ and NOT addressing the source of unresolved issues; but the symptoms only as the issues by medication.

It is important we get to take care of our Mind and understand its attribution/
Elenour
[info]elpenguinoiii wrote:
Thursday, 19 November 2009 at 01:11 pm (UTC)
I've met her, she's very funny, articulate and beautiful !

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