- Sunday 19 May 2013
- My Account
- Logout
- Register
- Login
- News
-
Voices
-
Find by writer
- Yasmin Alibhai-Brown
- Rebecca Armstrong
- Memphis Barker
- Terence Blacker
- Chris Blackhurst
- David Blanchflower
- Archie Bland
- Ian Burrell
- Andrew Buncombe
- Ben Chu
- Patrick Cockburn
- Laura Davis
- Mary Dejevsky
- Grace Dent
- Robert Fisk
- Andrew Grice
- Philip Hensher
- Ian Herbert
- Howard Jacobson
- Ellen E Jones
- Alice Jones
- Owen Jones
- Emily Jupp
- Simon Kelner
- Dominic Lawson
- Donald Macintyre
- Lisa Markwell
- Comment
- Campaigns
- Debate
- Editorials
- Letters
- IV Drip
- Archive
- Our Voices
- Commentators
- Columnists
- Democracy 2015
- IV Drip Archive
-
Find by writer
- Sport
- Tech
- Life
- Property
- Arts & Ents
- Travel
- Money
- IndyBest
- Blogs
- Student
Friday 17 August 2012
Leading article: The unacknowledged epidemic of our age
Dementia is still barely understood and sufferers often slip through gaps in the system
Coping with dementia is almost impossibly hard, the inexorable decline that accompanies it are unspeakably harrowing for all concerned. And with around 800,000 people already suffering from some form of the disease, and nearly 2 million expected to do so by 2050, the numbers are frightening. Even more alarming – as has been starkly revealed by this newspaper's series on dementia this week – is the inability of Britain's health and social care system to cope with the problem.
At its most basic, the difficulty is one of definition. Dementia is an illness that is so sprawling and still so widely misunderstood that our outdated categories for illness and infirmity have not caught up. Unless aggressive enough to be acknowledged as a mental health problem, it is considered to be an issue of social care alone, no different from any of the other frailties that go with old age. The result is sufferers all too often shuttled from one inappropriate facility to another, "a piece of lost luggage on a dementia carousel", as an Independent writer described her father's traumatic experiences.
Another central challenge is – of course – funding. Currently, all but the least well-off must bear the full cost of managing their condition themselves. Much-delayed efforts to reform social care by capping any individual's costs at around £35,000 are finally making some tentative progress. But even sweeping reforms to funding arrangements will not answer the question raised by Fiona Phillips – who watched both her parents succumb to Alzheimer's – as to why a person with terminal cancer does not have to pay for their own treatment while someone with a degenerative brain condition does.
Dealing with dementia is not just a matter of funding, however. It is also about the quality of care. Here, again, the lack of focus has much to answer for. Horror stories of patients either neglected, or rendered all-but insensible by a "chemical cosh" of anti-psychotic drugs, or confused and upset by being forced to live in deeply unsympathetic institutional environments, are more often the result of inadequate training than malice.
Not only are patients with Alzheimer's and similar conditions rarely accorded separate facilities in care homes and hospitals, but nursing and support staff receive little training in identifying their problems let alone responding to their needs. With a quarter of hospital beds filled by elderly patients suffering from dementia, and research suggesting that they both stay longer than those without the condition, and commonly leave in a worse state than when they arrived, the situation is wholly inexcusable.
What is required, then, is nothing short of a top-to-bottom overhaul of our approach to dementia. That means dedicated facilities for dealing with sufferers' complex needs, and automatic training for all health and social care professionals. Given that the Alzheimer's Society estimates that less than half of those with dementia have been diagnosed as such, attention must also be paid to ensuring that GPs know what to look out for. Meanwhile, more consideration must go into helping those affected to stay in their own homes for longer. A fresh look must be taken at how care is provided, and early efforts to make towns and cities more dementia-friendly must rapidly become the norm.
In fairness, progress has been made in raising awareness. But there must be action as well as talk. Although no less a figure than the Prime Minister recently warned of a "national crisis", and doubled the funding for research, dementia still receives far less than cancer, say, or heart disease. More pertinently, today's patients – and even tomorrow's – are unlikely see any benefit.
Dementia has been called the "thief of thought", its progress "death in slow motion". Sufferers, and their families, can no longer be allowed to slip through the gaps.
-
The Oxford child sex abuse case shows how the media talks in stereotypes but misses the big picture
Paul Vallely -
B-list scandals begin to take the shine off Barack Obama's halo
Rupert Cornwell -
The Daily Cartoon
-
Angelina Jolie's bravery has little to say to everywoman
Joan Smith -
It’s official: thanks to Stephen Hawking's Israel boycott, anti-Semitism is no more
Howard Jacobson
-
The Oxford child sex abuse case shows how the media talks in stereotypes but misses the big picture
-
When 'off the record' becomes on the agenda as 'swivel-eyed loons' furore grows
-
Offer voters the EU pizza and they'll spit it out
-
Marriage is about joy, whatever your gender
-
B-list scandals begin to take the shine off Barack Obama's halo
-
Angelina Jolie's bravery has little to say to everywoman
Get your summer started with British Military Fitness
BMF is the UK’s biggest and best loved outdoor fitness classes
Visit York
Find out what The Independent's resident travel expert has to say about one of the most beautiful small cities in the world
Enter the latest Independent competitions
Win anything from gadgets to five-star holidays on our competitions and offers page.
Business videos from commercial thought leaders
Watch the best in the business world give their insights into the world of business.
Related Articles
Get the best in opinion from Independent Voices, straight to your inbox every Thursday lunchtime.
Subscribe
Amol Rajan
A weekly update from the Editor
iJobs General
Teaching Programme Officer with Qualified Teacher Status
£28000 - £31500 per annum + benefits: Randstad Education Newcastle: Permanent ...
SAP FI-CA Consultant - up to £58k
£50000 - £58000 per annum + Benefits and Bonus: Progressive Recruitment: SAP F...
PHP/ Drupal Developer - £35k - WC
£30000 - £40000 per annum + BENS: Progressive Recruitment: Drupal Developer A ...
C# WEB DEVELOPER
£45000 - £50000 per annum + bens: Progressive Recruitment: C# WEB DEVELOPER Le...
Day In a Page
The price of pacifism
Jason Isaacs: Groupies, theatre bores and James Bond
Sealand: 'Micronation' or illegal fortress?
Legend of James Hunt has set Hollywood hearts racing
Macklemore: 'I don't have moderation'
Don't be shy: Bill Granger's Sri Lankan recipes
Gordon Ramsay's worst nightmare: A restaurant he cannot save
