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Blind activist reveals why she's having IVF to remove gene that led to sight loss

01:06

Disability activist Lucy Edwards shares pregnancy ‘question mark’ as she seeks IVF to remove blind gene

Blind activist and broadcaster Lucy Edwards has revealed why she will have IVF to remove the gene which led to her losing her eyesight as a teenager, citing one "question mark" which would surround the pregnancy if she conceived naturally.

Edwards has the rare genetic condition known as incontinentiapigmenti - the same condition which saw her grandmother miscarry nine baby boys.

She told Good Morning Britain on Wednesday: "I don't want to put my body through what my grandmother went through.

"If I don't have to, I don't want to go through that. With today's technology, it's amazing."

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